Thanks TLB. So far I've only needed one injection and it's been about 6 weeks, so I'm keeping my fingers crossed.
I take an injection every month. I have it for Menieres for 5 years or so. They work very well for me.
The injections are usually given in sets of 3. But if 1 is working then there's no need for the other 2.
I am getting my 2nd of 3 injections tomorrow. The 3rd next week. My hearing slowly improved the last few days after a couple of bad days of symptoms after the 1st injection.
I would get a set of three (if needed), probably 2 times a year. Sometimes one would do it, sometimes I needed all three. After a couple years I had to get three sets, a couple more years later I needed 4 sets and then they quit working all together
So appreciative of all the great information on this board and for JOH's incredible information. Thanks to what I learned here, I have been on Acyclovir for 5-1/2 years--no more cold sores, no more MM. But just when I was feeling a little cured and over it, I started some BPPV two weeks ago. First vertigo in all that time. So I am back here reading all the info on Vitamin D, which I had not known about. Would appreciate some info on suggested amounts. I see Vitamin D-3 recommended at 5,000 IU. Is it 200 mcg of Vitamin K-2? And then there was some discussion about magnesium. How much of that? I am also trying to shoehorn in my daily calcium citrate which already some D-3 and magnesium in my daily calcium. Such a dizzying combo of things to think about
I am new here but have read the talk boards from time to time and was diagnosed with Meniere's 20 years ago. The first 3 years were rough but I had a long period that was relatively symptom free, I even thought occasionally that I was done with MM. In the last 1-2 years, the symptoms have come back. Constant tinnitus & aural fullness in left ear, a full out vertigo attack about a year ago, dizziness and balance problems off and on & can't look at a computer screen for long periods of time. But I'm most distressed about my right ear becoming symptomatic in the last few months. I started the JOH regimen about 6 weeks ago and have had some improvement but have some questions. I have developed sores on my lips which look like cold sores but don't feel like cold sores. I thought it might be from the high dose of Vit C because it has given me canker sores in the past. I've quit the C for the last 4/5 days but am not seeing improvement. I used to get cold sores but they have been nonexistent for the most part since having MM. Could lip sores be from another supplement of the regimen? Or is it somehow related to herpes virus? If anyone has experienced this or has some insight, I'd be grateful to hear. Thank you! and very happy this site is here.
In the several hundred user reports I've gotten from regimen users, I've had none similar to this. No reports of any of the things in the regimen causing sores. Most likely, they are related to the herpes virus causing the MM symptoms; just not yet controlled by the regimen. You might want to slowly increase the lysine dosages, to a total of 4000 mg per day, in fractional doses throughout the day, at least half hr before eating, or two hrs after. You should also ask your doctor to prescribe an antiherpetic drug. Check the information on these elsewhere on this board. --John of Ohio
Thanks John, That confirms what I was thinking, that it is somehow related to herpes virus. (Maybe it's trying to rebel against the lysine - haha) Anyways I'm taking it as a good sign - that something is happening! I will look for Dr Gacek research and take it to my doc. Wish I had known about this 20 years ago. Thanks for all your continuing research - you are truly a hero!
I see Dr. Gacek in MA who explained that there is a relationship between cold sores and MM. The cold sore is the herpes simplex virus which travels to the inner ear. I kept a vertigo journal for years to try to figure out what may be causing the vertigo. Finally saw the trend: about a week after getting a cold sore, I would have vertigo. Dr. G prescribed a daily prophylactic dose of Acyclovir which has kept me cold sore and vertigo free for 5-1/2 years. He says I caught my Menieres early and so have less damage to my inner ear. The tinnitus is completely gone in my left ear. Still have a bit in the right. Pressure is alleviated in both ears.
John of Ohio - quick question for you. I currently use Tumeric and Moringa powders in my smoothie every morning. I was thinking about adding Cats Claw. Do you have any opinion on it as a supplement? Thanks!
I've never used or studied cat's claw. Saw some reports that it can suppress herpes infections. If so, it might have efficacy against Meniere's. No harm in trying it. --John of Ohio
Interesting to hear form an actual attention of Dr Gacek. It's a shame more Drs don't at least offer the AV approach up front to see what happens. I wish I knew about it long ago.
Well said...I went 9 years without even trying it. Steroids, Surgeries...you name it. Even if it didn't work...I wish I had tried it early on before all of the damage was done.