We need to take on the fight. Discuss organizations spear-heading treatments, potential fundraisers or fundraising ideas, what you've personally done to ameliorate symptoms, contact information of involved institutions, game-plans, etc. Organize and defeat.
I have said this in many threads, but I believe prosthetics are our best option -- to treat other hypovestibular disorders and hopefully even those with late-disease. Unfortunately, I do not know a lot about them apart from what I've read which was geared toward the laymen rather than in-depth explanation of how prosthetics might work.
I believe a viral trend will help raise awareness tremendously. I'm uncertain of exactly what this trend should be focused on. Maybe spinning in-place and performing some kind of task. Maybe competing with friends to see who is able to walk the straightest line, fastest, then tagging others to participate. I don't know what to name it.
James made a good point in the other thread about taking out advertisements to raise awareness with possibly gofundme fundraising. I think this is a good idea. We really need to decide who we’re going to support. I don’t know how to get in touch with John Hopkins, but I believe Bulldogs has in the past.
https://sites.google.com/site/vestibularneuroengineering/ We need some kind of confirmation that application could be used on menieres patients. If anyone has other ideas of where to direct funding, contribute.
Don’t make me shamefully bump this. In another thread I asked about mushroom supplements as potentially antiviral. I’d like more input if possible.
http://mykosan.com/medicinal-mushrooms-fight-herpes-hepatitis/ Information regarding mushrooms. If John could weigh in that would be awesome. I’m not exactly even close to qualified. I did look up lysine-arginine content of mushrooms and they appear to be fine.
A concern about implants: Is the nerve compromised in such a way as to make specific devices inoperable unless attached to the nerve... base? Apparently not in the subject used, but no idea if he lost his vestibular system to M.
I know it is possible to donate to John Hopkins, but I do not know to to donate specifically to vestibular projects. I think they’ll have to be contacted. I may try this and if anyone has existing contact with researchers this might be the correct direction.
I'm trying to contact all major Facebook groups. I would also like to contact John Hopkins researchers. If anyone can provide contact information please do. I really do believe a viral trend is possible to raise awareness and funds for dedicated research.
We could make a difference. This doesn't kill us. We have the time to beat it. I often feel like the clock is my enemy. Watching it slowly drain away the amount of suffering still remaining. It doesn't have to be this way. Time is our greatest ally. If we'd just utilize our time to fight. This doesn't end today, tomorrow, next week, next month, next year ... never. This is your life. Stand-up for it.