Menieres is just one aspect of my "syndrome" of aflictions that have no known cause/cure wastepaper basket dx's. Stuff like fibromyalgia, chronic fatigue, Migraines, irritable this and that. Do you have only Menieres or a bunch of other issues?
I have Meniere's (R deafness, tinnitus, fullness and occasional vertigo/puke attacks), and Migraine (nausea, fuzzy brain, often triggered by Chinooks/barometric changes - get them the same days I see my husband and son taking Advil & Tylenol). I think that the Vertigo episodes come more often when my migraines are active, perhaps mixed with weather, hormones, and perhaps dietary discretions (salt, nuts, lunch meats... trying to figure it out.) I've also been diagnosed in various times with Depression, Generalized Anxiety Disorder (after my first monster vertigo attacks), Fibromyalgia, Chronic Fatigue Syndrome. I would say I had Irritable Bowel Disorder until I went mostly Gluten Free (I was tested negative for Celiac). I don't know if I have Irritable Bladder, but I certainly go frequently (not huge amounts). Hypothyroid x 20 years. Hay fever - was active in Vancouver, not so much in Calgary. Is that enough??
I have Meniere's and sinus issues mostly. Possibly migraine but so far that has not been diagnosed. That is "enough" for me! ;D
I have MM, hypothyroidism, IBS, food allergy, seasonal allergies, osteoporosis, high bp, high cholesterol, glucose intolerant, lactose intolerant, back issues, arthritis......................... *sigh* I used to be young and healthy lol When I hit 50 and I fell apart. I don't have depression but after typing this post I might. ;D
Too many health issues to name. If I saw them all in print I would probably have to add depression to the list.
wow interesting, so it seems like myself, many MM sufferers have multiple issues. That is one reason why I never considered destructive surgery, I feel like for me, Menieres is just one part of a much bigger picture!
Health issues had a way of turning up as I approached age 50. I think that's sort of normal, even if my issues aren't. Let's see. MM. Cough syncope, which I'm convinced is a side effect of my low salt diet. Noise damage to my ear I consider an injury rather than an illness. I've had sinus troubles all my life, but only had a couple of earaches, ever. My right lung has collapsed a couple of times, that was diagnosed as genetic. I am more allergic than most people. I've also suffered from hyperparathyroidism, but haven't had an issue since two of those four glands were surgically removed. ( they affect blood calcium regulation, resulting in weak bones, kidney stones, acid reflux, etc. )
MM, migraines, PTSD, trigeminal neuralgia, acoustic neuroma, sinus issues, kidney stones, Asperger's, depression. Used to have acid reflux but got rid of that.
so my next question is ..... do you view Menieres, (as disgusting as it is,) being just one piece of a bigger puzzle (or one aspect or an entire syndrome )... and does this effect the way you treat it, specifically, like me, avoid any permanent destructive surgeries? Like, what's the point, if the syndrome can't manifest & show itself in your ear any longer it will just find a different place in your body to express itself.
I have cochlear hydrops. I had an acoustic neuroma removed by surgery in 1997. The doctors tell me the CH is likely a reponse of the immune system to the release os sequestered proteins during the acoustic neuroma surgery. It is a known phenomon, I am told. On another note, I have high bp typical of my age and of my maternal ancestors at this age. In Jan I started walking 2-3 miles EVERY day and now I have normal bp.
thank you all for your input, I know it is not always an easy thing to list all the diseases or syndromes you are suffering with and have it stare back at you in writing... at least for me it is not easy.
I have Cochlear Hydrops and TMJ disorder. And in the past I have had Bell's Palsy twice, both times it was on my left side.
Vicki, if you enjoy reading, I recommend a book entitled: Beat the Heart Attack Gene by Dr. Bradley Bale and Amy Doneen. Your comments regarding hypertension, high chol and glucose intolerance caught my eye. It's an excellent book and easy read.
I have meineres Mav and depression I think due to it oh and IBS all stress things. I am seeing a counselor cause I did not leave me house for 4 months due to balance. I was so afraid.
I'm brand new to Meinere's disease and this forum, but this post really caught my eye. I too have multiple other things - IBS, a heart concern (superventricular tachicardia), PTSD, Anxiety, and potential endometriosis (but I didn't want to have the test done to find out, though they decided to treat it anyway). I was also diagnosed and treated for Lyme last year. As a young woman (not quite 30) - this is a laundry list that is hard to carry... I feel the same exact way... like it is a piece of the puzzle. I'm on the same path of trying to get an overall sense of wellness in my body and mind, in addition to seeking Meinere's treatment from ENT... I went to a Chinese Medicine doctor who expressed that I was correct - all of my symptoms were actually rooted in my liver and lungs.... and while I don't understand the whole theory of Chinese medicine, I think it is intersting that they are the first "specialist" that I saw who considered the greater problem to include quite a few facets of concern that are all making the Meinere's "flare up" worse. Either way - I'm with you. I get vexed about the whole situation, and can't help but feel that I need to control the whole picture before any one piece will be right. Thanks for posting - felt good to see others wondering as well.
Menieres led to depression. Depression led to anxiety/panic attacks. Finally I was diagnosed as Bipolar and the new meds have helped so much that I almost feel like myself again. I think when you're diagnosed with Menieres and the multitude and variety of symptoms and especially drop attacks, sudden vertigo attacks, it is not a far stretch to have anxiety/depression issues. For those of you who have never experienced any off this, I am very happy for you. But for those of us who have, it's a very long way back.
Along with being almost deaf in my right ear I have constant tinnitus in both ears, have balance issues, occasional vertigo with nausea n vomiting. Also have Hashimotos n arthritis. Cataract in both eyes. I have had MM in my left ear since my 30s and just went bilateral this January.