Menieres --other symptoms without recurring vertigo??

Check out some of the other threads, but try changing to a low-carb diet (candida diet or alkaline diet), taking probiotics may help with the symptoms.

Also, CBD oil or full spectrum hemp oil helps me with the vestibular unsteadiness. I was using meclizine under the tongue. Meclizine is effective, but slower than CBD oil, and it makes you a bit drowsy. Valium under the tongue was the least effective, slowest, and makes me the drowsiest.

Now that recreational pot is legal in CA, you should be able to find some CBD or fs hemp oil without too much problem.

 

sadmuso, it's gotta be tough not to have a solid diagnosis. The tough part is that another ENT may also say that your symptoms just aren't enough to make a clear diagnosis of Meniere's. My doctor here in the US was unsure for some time my symptoms were the result of was idiopathic sudden sensorineural hearing loss or what she calls "endolymphatic hydrops". It's frustrating and stressful not to have a diagnosis.

If you go see a doctor, you can expect them to look at your history and give them an honest evaluation. They may tell you that your symptoms aren't definitive and you'll need to wait and see. They could find a potential diagnosis that your other doctor hasn't considered; they could even give you a firm Meniere's diagnosis. In any of those cases, it would be helpful to have a doctor who can help you monitor your symptoms and choose a course of action. (That doctor could even be the skeptical ENT that you saw previously.)

 

I understand the desire to be diagnosed with "something", but "Meniere's" is a fancy scientific term for "we don't know what you have, but we recognize the symptoms". If you have "something like" meniere's, it doesn't really matter if if they call it "vestibular migraines" or "George", it's probably the same underlying cause.

I prefer the term Meniere's Syndrome because Meniere's Disease implies that they know what causes it and how to treat it. They don't.

 

In addition to tinnitus, fullness, and vertigo, the fourth marker of a Meniere's diagnosis is hearing loss in the lower registers -- which is not what typically happens with aging.

 

Hey OP, I'm also a working composer/musician and I am in a very similar position to you. I have a lot worries about it, and I have no idea what I will do if it takes a turn, this all happened just as I finally got a decent break in the industry....but I have learned to cope and just live day by day hoping for the best.

I basically have been told its most likely Menieres/early Menieres, but it could be anything else. Without the classic textbook symptoms its pretty hard/impossible to diagnose 100%, even for a specialist. I saw a great ENT who specialises in it, but the best they can do is basically give you the betahistine/duretics etc, tell you about the low salt, stuff we all know. There are steroids as well, but I don't know if that's what they would do at such an early stage / in an unclear diagnosis.

I wish I had more answers, just wanted to chime in because your case sounds a lot like mine. I spent some good money going private (wait time was like 5months public to see someone who knows about Menieres and that just seemed too long for me) and did a lot of testing (VEMP, etc), nothing came back, but that doesn't mean it's not Menieres, some people don't develop all the symptoms, some do, for some it happens in stages, etc. For them to give you the official diagnosis you have to have all the classic symptoms, until then, it's guesswork.

As it has been said Menieres can also really just be a name for a bunch of things. (Vestibular Migraine, etc as well).

All the best, definitely look into all you can, diet stuff, good that you've given the JOH a go, I really need to try that myself.