Moving forward with treatment

BenLeg,
Welcome, and I'm sorry you are going through this - particularly at such a young age. You should get a lot of advice from the people on this site. It has truly been a God-send for me.

My disease struck when I was 31 and I had the severe episodes periodically for ten years before I was diagnosed. I then did the diuretic, low salt route. It helped for several years but I would still have attacks. Then I had some really nasty bouts including my first drop attack and consequently I found this site.

I immediately went on the JOH vitamin regimen. It helped so if I were in your shoes I would try that.

After years of pretty good health, the disease started into what you describe as being just part of daily life. Frequent disequilibrium, nausea but not the severe vertigo. Hearing in my effected ear was always deficient but it really began fluctuating into poor hearing.

Then I started Antivirals (valacyclovir, 1000 mg 3x daily). It took a while but I settled in on the Northstar brand last June. I am happy to report that I have been symptom free for exactly one year today! And my hearing is much improved.

If you decide on the Antiviral route and encounter resistance from your doctor I can tell you what I did. I looked him dead in the eye and said I can't live like this. He wrote the prescription and has been doing it ever since.

Best of health to you.

 

Hi BenLeg,
How are you doing now? Did you find some orher changes that helped?

 

You could ask your doctor about having the vestibular nerve section surgery. It worked for me.