Struggling still...

Discussion in 'Your Living Room' started by Fisherman42, Mar 7, 2019.

  1. Fisherman42

    Fisherman42 Active Member

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    Since my relapse 2 weeks ago after 16 mos I have been FIGHTING to right the ship but nothing seems to be working. I just got my Pharmacist to switch me back to the AV I was on when I was good. Upped them to 3000g grams a day along with Lysine and Monoalurin and cut back on caffeine, alcohol and salt. But the uneasiness keeps with me along with the fullness in my ear that only subsides when I sleep. When I wake I feel okay for about 15min then it seems everything settles in from the top of my head and its on again. I have 2 to sometimes 3 vertigo episodes per day all fought off with Meclizine and Lorezapm. Also I'm totally exhausted. For the past year I went to the gym 3+ times a week I could run 2 miles flat out, lift as much as I wanted and now I cant stay awake past 7. Fighting to stay positive for my family, fighting for my job, just fighting all the time. I don't know how I could go from so go to so bad in the snap of a finger. Gone over and over in my head what it might have been that triggered it but I've got nothing, nothing.
     
  2. AnneT

    AnneT Well-Known Member

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    Do you have a good specialist to see?

    I wish I’d got that organized as soon as my remission ended 1 year ago.
     
  3. Kevinb003

    Kevinb003 Active Member

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    Hang in, brother...hopefully the setback will end soon. If there is one thing we learn having this dreadful condition it's that the unexpected can always be around the next corner. Keep fighting.
     
  4. Fisherman42

    Fisherman42 Active Member

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    Thanks Guys, trying to keep the faith just hard sometimes.
     
  5. Chinook

    Chinook New Member

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    If your AVs worked before, hopefully they'll start to kick in again soon. If meniere's is truly is caused by herpes virus (and that's what I feel is the case for me anyway) then I doubt you did anything wrong to trigger it. Isn't it just that the virus rears up again? I've had it come back too and after getting back on Valtrex and have been able to beat it down. Full dose until it subsides and then some with gradual lowering maintenance dosage. So I would encourage you to keep taking your AVs and hang in there. If your AVs worked before, hopefully they'll come through for you again.
     
  6. Fisherman42

    Fisherman42 Active Member

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    That’s what I am hoping I don’t know why they wouldn’t work again. I’m in a dark place after having my life pretty much back and now lost it all over again. A day doesn’t pass right now with out taking at least one if not two Valium just to get through the day.
     

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