Sorry Bennyhill I’ve been on your regimen for 2 weeks and I’ve seen no improvement in my symptoms in fact they’ve steadily grown worse. After 16 mos of AV’s and almost a complete remission I’m right back where I started 4 years ago. I appreciate the hope you give people but I don’t know if cure is the right word to use.
After dealing with MM for 11 years...I believe it is a perfect storm scenario (multiple factors) that wrecks havoc in our inner ears. I do believe in my case a virus played a major role to start the damage. Which is why I believe antivirals have been helpful. I was also 9 years in before I started the antivirals. I already had severe hearing loss and permanent vestibular issues. They have been helpful - but not a cure. I still have symptoms and flare ups. I think the odds of having a complete recovery (Scott Tom level) of getting your hearing, balance and jumping out of airplanes is maybe 5-10%. My guess is if you get that lucky...your MM was never really that bad. I think most people (not all will) who benefit from antiviral regimens will see a 50-70% improvement in their symptoms. By no means a cure. But it is better than nothing. MM can be very frustrating. Some people simply lower their salt and this nightmare goes away...lol. How frustrating is that? No two cancers/tumors are the same and I think the same thing applies to MM. We all will have our own journeys and things that work and don't work. I guess the point is... if antivirals are helping - stick to them - just know there will be hic cups along the way.
Mac, I tend to agree with all you said. Your take on MM is pretty much mine. So many variables. And what we think we know about our treatment and reactions, cannot be known for sure. (Yes, in some lucky cases it's more cut 'n dry, for sure). But I think many (or is it most?) MM sufferers are still groping in the mist. Some never seek treatment. Some do, with mixed results. Some are afraid of surgery, so they linger in the holistic forest forever. Virals "work" for others. Some have almost all the surgeries and are still f**ked. (me). Some, like an ex-girlfriend of mine, have it so mild she's fine with it. Who gets to have mild Meniere's?! It's not fair. And then there's the hockey player types who tell the doc to just rip out my ear, and are good after their laby. They just say "huh?" alot. The people I'm most jealous of are the ones gentamicin works for.
There can be a genetic predisposition too. My dad had Meniere's, though it came on later in life and never got as bad as mine did. On the other hand, I have an identical twin who does not have Meniere's. It's certainly a strange disorder.