10 Point Test For Menieres

While this list is helpful, having at least 8 of the symptoms doesn't mean you definitely have Meniere's. It means you should see an ENT for testing to rule out other possible causes. Self diagnosis is never a good thing.

 

I have only the last 2: Tinnitus with #8, Fullness only. but my ENT diagnosed me with Atypical Menieres Disease.
I continue to be baffled with this, my 2 symptoms are slowly improving following JOH and Bennyhills regime. I've been doing the B5 & B6 for almost a month and my tinnitus is now coming and going. Been doing JOH since February first, at that time my Dr. also put me on a Antiviral which I requested.

I really am baffled by my 2 symptoms which started in August 2018. this forum has been a God send and I appreciate everyone's input so much.

 

First of all thank you for telling your story because it has helped me. I am going to keep on the B5 &6 as I believe it has helped. I have decreased my salt but will pay closer attention to it and make sure I am very low in intake. Ive never been a salt person so its not difficult to decrease it more. Again thank you so much for your story and all your information.

 

To add to the above, I started the B 5&6 on March 8th. The tinnitus has decreased altho yesterday was louder than it has been, I also had a vise like headache yesterday which had gone away. I have been under some stress the last week and also its spring in FL so allergies, not sure if these 2 could have affected me yesterday. As I said any change is welcomed and I am going to continue with the vitamins and not discourged at all. Just looking forward to it going away at some time. And again thnak you for replying to my post and all your info!! Have a wonderful day.

 

Thank you, I have no wooziness and the full feeling is minimal to not having it on some days. Yesterday the tinnitus was very low. So I continue on!!! I could not find the B5 in 125 mil. so I have the 100 mil and break into 3rds or this week I have just halved the pill. Again thank you so much!!!

 

EmilyP
I’ve read that B6 can, indeed, increase headaches. B2 and magnesium can be protective against headaches. But we all react differently.

 

You can have cochlear hydrops which is a varient of the same thing, without many or any of the vertigo symptoms. It also can result in deafness and may proceed to classic (vertigo) menieres. According to my dr whether it is cochlear hydrops or endolymphatic hydrops or menieres “the whole enchilada” just depends on exactly which part of the inner ear is affected at the time and it can progress over time. Also as mentioned by another poster you may have all the listed symptoms as a result of something else, such as a brain tumor or other ear damage.

 

Benny: "Congratulations. You are on your way to being Menieres free."

I mean, you may want to chill just a BIT on the confidence. There may be people coming here for the first time, very scared, and suddenly they read there's a cure through B vitamins.

 

Nevermind. It's ok. Adults can make up their own mind.

 

Just tobe clear, when you say your experience of nine years, do you mean your personal experience or that of many people you have treated? If many you have treated, could you elaborate upon your professional background? I ask because while i do not doubt your personal success and appreciate your sharing it, it is also true that many people including myself (11 years now) have had success with antivirals, and many also with the John of Ohio approach, allergy treatment and others with surgery such as a laby or VNS etc etc. Some even by correcting their diet in the area of sugar issues and I believe I remember one person for whom B vitamins were the answer although I believe in her case, it was b12. So far there seem to be many avenues for success for people diagnosed by highly qualified professionals in the inner ear business and yet, no single silver bullet that works for all, and not even a single test that confirms MM or a single explanation for it’s cause. This is important for new people to know.

 

I am a retired computer programmer, so we have something in common.

I have cochlear hydrops in my (left) only hearing ear. It started in 2007. The distortion and tinnitus were relentless and without overstating it made my life bad. I also had tulios type symptoms, certain sounds made me nauseated. I had some imbalance, it was not safe for me to stand on the edge of things. I had infrequent odd things such as when the whole world would appear to tilt right for a few hours. I had in addition to distortion, autophony , classic menieres hearing loss, tinnitus and many more hearing issues, clanging, sounds of fans and motors in large stores, everything but vertigo and that was clearly on the horizon.

The standard low salt, diuretics etc did nothing if not made it worse. Since my right ear was already completely and permanently deaf, doctors would not consider surgery and after a period of trying the usual sent me home with nothing more they could do. These were well know specialists.

From things i read here i learned of two possibilities antivirals and allergy treatment. I talked to my family dr who knew the specialists had waved me off. She said she saw no reason not to try the antivirals especially since she was aware of herpes viruses CMV i had had a problem with in the past. Miraculaously within five days of acyclovir i began to get a little improvement in the autophony, my most hated symptom. Improvement continued for a month and i judged i was 60% improved in distortion and the ent said 5% improved in hearing but then it stalled there.

Once more, based on things i read on this forum, I then went to LA to House Ear, Dr Derebery who continued antivirals and added allergy testing and shots. Gradually i regained my lost hearing in the lower ranges. A little in the highest ranges never came back. So now it is 11 years later. I have no balance issues, normal hearing, no tinnitis to speak of, no progression to vertigo. Without this treatment i would undoubtedly have lost all useful hearing and developed vertigo all in my only hearing ear. I have not taken antivirals for many years and i quit allergy shots about 3 years ago. I receive no treatment at all for the hydrops at this time.

I do not know for sure but it seemed to me that the antivirals did more for the distortion and the allergy shots did more for the hearing loss. I am pretty happy with the way things turned out. I do not assume everyone’s hydrops is of the same origin as mine but the large number of people on the board who have had success with antivirals make me think it may be a common issue. I do ‘think’ that menieres is more a perfect storm of assaults on the ear and immune system of several things happening at once which makes it hard to pin down. I dont know, it just seems that way from what i see. I also do not assume that your approach is entirely different than the antivirals. Who knows what the route is in the body is for these things. What might a vitamin deficiency cause secondarily etc? We dont know. Congrats on your success. The most important thing i want to convey to new people is, there is a very good chance they will find a way to get substantial relief. Do not abandon hope.

 

Saying "Meniere's free" and "Meniere's attacks", doesn't make sense. One could say "dizzy free", "vertigo free". Or "spinning attacks". I have to assume you're very, very, very retired.