10 Point Test For Menieres

Just to let you know Bennyhill, there are probably many like me who ran out and bought b5/b6 when they read your story and have been taking it since because any chance for relief is worth giving a shot if it is only popping two vitamins daily. So thank you from one of the mostly silent readers for giving us a glimmer of hope. I have been taking it for a couple of weeks now. No real change yet in my tinnitus but JOH and antivirals have stopped the vertigo now since June '18 so I am trying to defeat or at least lessen the noise in my ear which is the one main symptom that remains.

 

Bennyhill, I am so thankful for all of your post and I follow you daily. I’ve been on your recommended B5/B6 for 3 weeks and 2 days. I’ve had one brief vertigo attack (on day 8) lasting only 1 hour (mine usually last 2-4 hours). This week I noticed the tinnitus was fading in and out. I’m looking forward to being “free”. I’ve had Menieres since 2008, and have been told year after year there is nothing they can do but treat the vertigo, low salt diet, diuretics(which I can’t tolerate) and a hearing aid (which helps greatly).
Keep posting, thanks again.

 

June your symptoms sound similar to mine. The tinnitus just awful and largely affected by outside noise. I also find allergies to be a problem and have never seen improvement through limiting salt, just kind of did it out of paranoia and it was the one thing the docs seemed to agree on. Do you monitor your salt intake at all? I’m wodndering if I should test the waters on that...

 

I journaled my sodium intake limiting salt to about 1300 mg , i think it was a day, for a while even made my own bread too because most baked goods are high in salt. It did not help. It helped when i quit making my own bread because i discovered the whole wheat flour in the air when making it was causing symptoms to be worse. I am not a big salt eater, i rarely add salt at the table but i do not watch it any more. Allergy testing and shots take a long time to be effective but they were very effective for me. The time will pass anyway ... might as well come out the other side better. Remember, if you react badly to an allergy shot it probably means that is the problem and you should continue treatment although you may need to get with the doctor about chaging the dose to keep everything safe. You may need to carry an epipen too just out of an abundance of caution. The dr will cover all that.

What did help was eliminating caffeine, gradually but completely.

Good luck!

 

I think the thing that bothered most was the statement "The cure for Menieres disease", so many have seen this statement in so many places while doing research and it only turns out to be another snake oil salesman most of the time. Just be careful how we all use the word cure, because what is a cure for some is a curse for others, it's going to work for some and others not. The statement did not bother me and I for one will probably try your regimen for a while, most of us have very little if anything to lose by trying it.
Thank you for posting your experience and how it helped you, hopefully it will offer relief for all who try it. Please keep us all updated on your progress and condition, it helps us all in many ways.

 

Benny, I was just speaking technically. There's no known cure for Meniere's. So "Meniere's free" can sound misleading. "Symptom-free" would be a better choice of words. It's also possible that you were misdiagnosed with Meniere's, and had something else. Keep in mind that Meniere's is unsteadiness, hearing loss, aural fullness, and tinnitus.

I was incorrect to say you can't say "Meniere's attack". Because when one gets a spinning attack, it's often all four symptoms above at the same time. Sorry about that. I personally just don't phrase it that way. I say spinning attack.

 

No, you went further. Irresponsibly further. You set yourself up as Jesus with the magic juice. You set a high bar for yourself. So you can expect blowback.

It's all funny and doesn't really matter. But it's not really funny and it kinda does matter.

That's all I'll say again on it. You're a sweet guy. Just goofy as f**k.

 

It’s the attitude Benny.

 

Benny, just to be clear, no one thinks you're a snake oil salesman. You're a good guy who's overenthusiasm made you present your idea in an inappropriately cocksure way. If down the road you're never heard from again I'll be sure to let people know "there was a Mad Hatter named Benny who swore by B5/B6, maybe give it a shot."

 

Did not intend to affiliate you with a snake oil salesman, Just the statement, was not trying to offend anyone at all. Not here to argue or condemn, only to learn and have some interaction. However, again, it is simply the use of the word CURE, that's not a word to be thrown around lightly.

I am going to try your regimen but I will get it cleared by my Nephrologist first before I begin, I hope to find some relief in it.