I am purchasing my betahistine (Serc) through a Canadian pharmacy for 39.00 for 90 8 mg tablets plus shipping. I will be receiving a new prescription from my ENT to fax in, as he has increased my daily dosage. My ENT has had a lot of success with his patients that are on it. We are increasing dosage slowly as he wants me to have the benefits from the least amount that I need, instead of starting strong and then lowering the dosage to see if it causes relapse. I am hoping I end up being one of his patients that this helps!! The vitamin B's are natural form, (active). He says that not all vitamin B's that are purchased over the counter will penetrate the cels where they are needed. I'm waiting for a special blood test result testing the vitamin B levels in the cels. It will be interesting, to say the least, to see what the test results say. Thanks for the Lysine info. I will increase my dosage. I also read that the Lysine should be taken at least 20 minutes before, or 2 hours after you eat so that you are taking them on an empty stomach. Rich, are you also taking antiviral? If so, how much?
Rgv, I have had this crud for 19 years, or more. Water pill; Low sodium, low sugar, (carbs), diet; no regular coffee with a cup of decaf once in a while; at first no alcohol then after a few years I would drink a few glasses of wine or have a drink; and for about 15 years I did relatively well. No significant hearing in that ear, although I have sound sensitivity, Tinnitus never went away, though severity was up and down, fullness up and down but not severe, and no vertigo. But, in Jan. of this year things started getting worse again. A ton of fullness and a lot of bad tinnitus, generally feeling like crud, headaches, etc. Even my jaw hurts at times because of the fullness, and more times than not I have felt I was going to have a vertigo spell at any moment. Got even stricter with my diet and have lost 15lbs. There are days that even though I'm being extremely strict with diet, I will gain a lb of weight from one day to the next, and my ear fullness and tinnitus are worse. So, even though I attributed the decent years to low sodium and water pill, I'm not sure how much of it was just the disease being in somewhat of a remission period. That's the trouble with Menierer's. There doesn't seem to be an answer, or one size fits all way to manage things.
Adam, how long have you been taking betahistine? Do you feel that it is helping you at all? Are you also taking antivirals and/or L-Lysine?
Rebecca, I agree, no one size fits all for this disease. The doctors just pass you along to the next DR because they don't know what to do with it and during all this, you're paying for every test imaginable just to CIRCLE back to Menieres. Frustrating
I have been on the 3 * 16mg betahistine per day since around 2013. Some parts in 2015 I reduced this by half dose, but this had no effect change and has went back to original dose as I was still having vertigo attacks. I still get terrible attacks being on betahistine so I’m not sure if it does much. Haven’t taken antivirals yet or lysine. I trying to give something new a go for a couple of months to give it a chance. Hard to know as it could just be in remission.
Rebecca Please bare with me not much for iPad typing, I'm one of those one finger typers. Lol I have a lot to say so it will take multiple posts to convey how I navigate through life with MD, so please forgive the left out words and misspellings. I've had MD for 12+ years, I can only give my thoughts, how I dealt with it and give advice to a " Newby" whose been diagnosed with MD. Other people on this forum may not agree with me but I'm only telling what has worked for me and it may not work for anyone else. (1) We have a disease that's at this time there is no cure for. Nobody in the medical field can tell us why or how we got it. We have to except that, not a one of us wanted it. (2) At this time there really isn't any studies going on to try and find a cure. Sadly. (3) MD feeds off of anxiety and stress. Best to get on a anti anxiety medication. Anxiety intensifies the vertigo which intensifies anxiety, it's a vicious circle. I can tell by your post your very anxious, we all are, find someway to get it in check. It's tough but doable. (4) When we have attacks it isn't going to kill us. Last time i checked there's never been a recorded death from MD. (5) Don't think of it as a handicap but a inconvenience. (6) Don't live your life around waiting for the next vertigo attack. Live and love life, the next attack will come, get through it and continue on. There are people in this world who would rather live life with our disease then die from theirs. There are going to be a some people on this forum who might be offended by this post but please understand I know what it's like to have multiple attacks. I know what it's like to lay in bed in the morning, afternoon and evening throwing up with dry heaves, not being able to walk or focus on anything. Thinking I'm going to have a stroke or heart attack because I've vomitted so much. But I absolutely will never give into MD....Never!!! By the way, a little background, I'm 58 diagnosed when I was 45 with this "inconvenience ". MD WON'T WIN!!!!
Wrote all of that to discover I posted on the wrong thread. Go figure well anyhow hoped it helped. Lol
Low sodium did nothing for me. In fact, when I've indulged in a high-salt Asian meal, I've either not noticed any difference in the way I feel the next day and sometimes have felt much better.