Doctors and Clinics???

The two best doctors I have seen for my menieres was

Dr.Douglass Mattox at Emory University in Atlanta

And

Dr. Rauch at MEEI Harvard/Boston

They told me not necessarily what I wanted to hear but what I needed to hear to put an end to the suffering mm was causing me. Good Luck

 

My neurotologist is Dr. Hahn at the Dallas ear institute. He is excellent. Good luck and I hope you find some relief.

 

Dr Jenifer Derebery at House Ear Clinic in LA. She is an allergist as well as an ent and is affiliated with the best in the world. I like her because she is a big picture person. She uses more than one approach.she treated me with antivirals and allergy shots and i now have normal hearing and have not progressed to vertigo etc which was on the horizon when i went to her. I traveled from Pittsburgh to see her. It was worth it.

 

I had a good experience with my laby at Mayo in Rochester, MN last August.

 

I was told Mayo Rochester takes Meniere's patients only from Minnesota and states adjacent. Perhaps the Florida clinic has different policies. I had been getting care for years at a university hospital and switched when considering destructive treatments and not getting full answers about the options. It is a comfort to have a highly experienced surgeon when a hole will be drilled into the skull.

 

Dr. Jeffery V

 

Dr.Jeffery T Vrabec in Houston, TX.

 

If anyone is in the SoCal area and suspect you are suffering from migraine and not Meniere. Try to make an appointment with Gail Ishiyama. She is a neurologist at UCLA. She only sees patients from referral from another doctor and requires all your medical records sent to her before you can make an appointment.

She is the first doctor who didn’t think I have CH and started exploring the possibility of migraine. Before seeing her, I’ve seen a dozen of ENTs including being a patient at the House Ear Clinic in LA for several years. I’ve tried pretty much everything that’s noninvasive, allergy spray, allergy pills, diruetics, serc, different kinds of antiviral, low sodium, Chinese herbal medicine, upper cervical chiropractor, steroids, no caffeine, no alcohol, etc and nothing was working.

I’ve been almost symptoms free (had 2 mini episodes last year) for 1.5 to 2 years now

 

For future Canadian’s who might stumble across this: in Calgary right now Dr. Euna Hwang at the the Neurovestibular Clinic (South Health Campus) does the vestibular testing, medical treatment and gentamicin injections. They may get a new otoneurologist eventually, now that Beth Lange is gone.

Dr. Phillip Park does the surgical options.

Get your referrals in ASAP, because you’re looking at a 5-8 month wait.

If you just can’t wait and have some $, you can go to House Ear Clinic in LA. Or check out the Mayo Clinic - part of their website is devoted to Canadians seeking care.

 

Junes recommendation is the gold standard in anyone’s book. Bulldogs gives a good choice of Dr Mattox at Emory in Atlanta ....he partners with Dr Tusa who manages the dizzy balance end of things. A good team. My fav non surgical practice is Dr Tim Hain. He is the top MM doc IMO. If you need to get cut on he will refer to a top surgeon. For CI take a look at Vanderbilt and see what they are doing now. Amazing. Intra operative imaging that guides the surgeon into the correct scala opening. Note my photo. That is a screen shot of me while still open on the table as a team evaluated the placement of my electrode array. Yeah, dont head to the closest ENT. You will be frustrated.

 

Wow that’s great news! Please share how you became symptom free. My symptoms seem similar to yours and my docs aren’t convinced of one diagnosis or an another... thank you for your time

 

Clare, who is/was your ENT specialist at Mayo? I see Dr. Paparella in Minneapolis but I would love to know more about the staff at Mayo Clinic in case I decide to seek second opinions.

 

HI, RO. Dr. Neff was my very experienced surgeon at Mayo. When considering the laby, I wanted a surgeon who had done lots of them, and a facility that would be great for the follow-up care. Mayo and Dr. Neff provided both of those.

Before Mayo I was seeing Dr. Tina Huang at the U/Fairview. She's very good. However, I had an unfortunate incident during VNG testing where my eardrum was punctured, and it set me off on a severe flare of unrelenting vertigo episodes. It wasn't handled well administratively, and I felt uncomfortable going back there in a sort of PTSD way. Dr. Huang was out of the country at the time, and it might have been much better if she'd been there. My incident was related to a specific audiologist and a specific situation, and not at all to Dr. Huang, so I'd still recommend her.

Check out posts from Saera, who is currently seeing Dr. Huang and going through gentamicin treatment with her. I hear Dr. Paparella has or is retiring, and I think Dr. Huang is now the best in the Twin Cities for Meniere's treatment.

 

A little update/correction to my earlier post for Canadians, especially in Calgary, Alberta.

Dr. Euna Hwang also offers labyrinthectomy.

She’s very nice, young, willing to learn, was keen to hear about my experiences with the gentamicin. The clinic gave me a free hearing test during follow up visits.

 

Thanks for sharing.

So you didn't see any ENT at Mayo for regular consultation? Just the laby?

With one vertigo episode in a month and some lingering dizziness I'm a long way from considering any surgery. So far Dr. Paparella is optimistic that I may have a more manageable version of the condition, but I think it's far too early to say. Either way, I want to potentially find another specialist in the Twin Cities who knows this disease well, especially if Dr. Paparella is in fact retiring.