16 years with Meniere's

Did you see a neurotologist? A doc who specializes in ear brain connection? Did anyone ever suggest a laby to you? If you have tried alternative treatments with no success you might want to discuss a laby and get on with your life.

 

Hi Ron,
I remember you from my early years on this forum. I was struck with it in 2011. I've been curious how the "Stephen folk" have fared in the last few years but understand we can't discuss it really. If you can give a very general summary on if anyone really got great results, in a general sense, I'd be curious to hear.

Sorry to hear you are still struggling with things. I ended up having a laby last year which gave me my life back. I am still struggling a bit now, though nowhere near the same extent, and we think it's more vestibular migraine at this point. No straight up vertigo anymore, that's the important thing.

 

Nice to see you Ron. Sorry you didn't find complete relief. I assume you tried antivirals already. I always have to throw that out because they were a Godsend to me and i hope they will work for someone else. Praying a miracle comes your way.

 

Sorry you are back,I am on here very rarely as well. I just retired last year but am still working.I am bilateral and the vertigo is hopefully gone as they said I have no balance system in my ears left.Did lots of vestibular rehab. 2 hearing aids and the reason that I stopped by today is because I have lost hearing in my good ear and have the usual shitty tinnitus going on in both ears. I can't talk on my phone as the hearing sucks.I too am sick of this shit. I admire your fortitude.We are all a tough bunch to put up with this crap.I am only on about 11 years. Hang in there maybe the burnout will come for you.

 

You've been sorely missed, Mr.

To the best of my understanding burnout is uncommon, & doesn't occur at any particular age, but rather, as the term suggests, when there's little to nothing left of the inner ear to further destroy—of which hinges more so on the age of onset & the rate of symptom progression.

Burnout, unfortunately, & again to the best of my understanding, concerns the symptoms of drop attacks & vertigo only, wherein the cessation of drop attacks & vertigo succumb to permanent disequilibrium. Tinnitus, aural fullness, hyperacusis, hearing loss, clouding of consciousness & all remaining symptoms excluding drop attacks & vertigo remain.

 

Hey Ron,

I'm not so sure "burnout" is a goal worth achieving. I was diagnosed 12 years ago and have lost most of my hearing in my ear. 3 years ago two doctors in NYC diagnosed me in the "burnout" phase of MM.

It essentially means no more monster vertigo attacks but you live in a constant state of disequilibrium. You literally live your life off balance...It is no joke my friend.

I just turned 40 and have two kids under the age of 5... Really hoping one of these inner ear biotech researchers bails me out in the next 10 years.

I wish you luck with your battle and hopefully your ear settles down.

Have a great weekend!

 

Doctors throw out various ages for burnout because they don't otherwise know what to say. I am 72 and have symptoms every day and for 30+ years. I rarely get vertigo anymore but when I do I throw up and get it over with. this is a horrible disease.