how do you keep going

I've come to the conclusion that unless someone has actually experienced this, they just don't understand, no matter how much they might care. I deal with this with my husband, too, although he is getting better. I have no doubt that he cares but he has no clue as to what I'm really dealing with. I do what I need to do to take care of myself and if that means declining to do something, or bowing out of something at the last minute, so be it. I learned a long time ago to not push myself to do more than I feel I can do, because if I do, I will only end up feeling even worse.

 

Verti, my heart breaks for you.
My advice would be to take your husband with you on your next visit to your Oto and have the doctor speak with your husband and let him hear it from your doctors mouth just how crippling and disabling this shit can be. I often find when a dr says it people tend to listen.

PS.....I always tell my wife your good good friends will come get you out of jail at 3 in the morning, your best friend says “man that was fun we should do it again sometime.”

I’m so glad I married my best friend. Lol ❤️

((((((Hugs Verti))))))

 

I've given up trying to relate it. If I don't feel good, I just say go have a good time, I'm not feeling well. If they still don't get it, I tell them to go away. The next step is to puke on em. That will get them 100% of the time.

 

I agree! When your friends hear the puking going on, you get a little sympathy, if not full understanding!

 

Maybe your husband could video you crawling on your hands and knees towards the bathroom floor. Just kidding of course....but we all suffer from a syndrome that doesn't always show on the outside....like when my son was in elementary school and he had a severe learning disability and I had someone say to me " he doesn't look disabled." WTF??? I know how you are feeling. Do the best you can and try not to stress over others not getting it because they never will! But everyone here does