Clare

Had labyrinthectomy with BAHA on Thursday; home on Sunday

  1. Bonlyn

    Bonlyn Active Member

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    Dec 29, 2017
    New York
     
  2. PleaseNoDizzy

    PleaseNoDizzy Active Member

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    May 12, 2014
    Ill message you Bonnie so I don’t railroad Clare’s progress thread ;)
     
  3. Bonlyn

    Bonlyn Active Member

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    Dec 29, 2017
    New York
    Clare, so sorry to have railroaded your thread. PleaseNoDizzy so nicely pointed out there is a messenger option. So sorry to be so clueless.
    I have been following your thread over the years and empathize with your journey. Though it must be cold in Minnesota at times, what a blessing to be so near the Mayo Clinic. I have heard only good things about them.
    And what a blessing it is to the rest of us for you to share your honest journey and to give us insight to the process and hope. May you continue to heal and be vertigo free. Best to you. Bonnie
     
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  4. PleaseNoDizzy

    PleaseNoDizzy Active Member

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    Ack! I didn’t mean to imply anyone was railroading. I just didn’t want to go on about my stuff in this spot. Bonnie, you are fine :)
     
  5. Clare

    Clare Active Member

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    Mar 31, 2018
    PND -- Good to hear from you. I've thought of you as sort of a big sister as you went through your laby experience a month before mine and described your decision, surgery, and recovery so well. You helped me to navigate through my fears and take the steps to claim a life truly worth living when I thought that wasn't possible.

    It stinks to have the dizziness/imbalance return, especially after thinking the laby would take it all away. I hope the migraine meds can help you get closer to your 100% without uncomfortable side effects.

    That's a tough decision about removing, or not, the BAHA abutment to stop the possibly chronic infections. It's not like the decision of whether to get a laby, which is pretty clear cut when you're desperate. It sounds like you're comparing apples and oranges in determining the path to your best quality of life.

    Meniere's is a disease of dashed hopes. Just when you think you've got the upper hand, it can sneak in another blow.
     
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