What to expect?

JennF. That's sounds about right. Though it varies greatly. I had a rough first 2 years. Then surgeries. So I'm "ok" now, with slight dizziness in evenings, and constant head-movement weirdness.

I try not to think about what you brought up. I've read so many stories here and elsewhere of people having that nice middle period of 7 to 12 to even 20 years. Then whammo! it's back again. I got one of my 2 balance nerves cut, so as long as I don't go bilateral, I think I'll be alright.

You?

 

I think the only thing that’s predictable about this disease is that it’s unpredictable. Not very reassuring, I k know. I’m sorry. I’ve been on this board for 8 years, since mine started. Some people report it hits them like a train with no real let-up. Others report glorious periods — years long — between bouts. Others are up and down like a see saw. It’s so hard to make a generalization.

For me — I was super sick for the first year with all the symptoms including a bunch of severe vertigo. Through diet, medications, or just dumb luck, the bad vertigo subsided for about 5 years. I never had a day where I forgot I had MM, as the other symptoms were pretty bad. But I wasn’t in danger of falling over either. Then the vertigo returned on year 7 and I ended up w a labyrinthectomy. I guess that *sort of* fits the pattern you allude to, but my life was still altered in a great way during those 5 non-vertigo years.

 

I was under control for about 5-6 years then I got a virus from my toddler and my life was never the same...ha. hate to be sound overly dramatic but it was a game changer. try your best to stay healthy...a weak immune system is an invite for MM to ramp up.

good luck!