Pre-gentamicin injections questions

I definitely have Meniere's. My tinnitus is also pulsatile, but initially that freaked the docs out. I needed an MRI to rule out tumour or aneurysm. Have you had any imaging done?

For the nausea and pukes... I found sniffing rubbing alcohol worked better (and cheaper!!) than Zofran.

Where do you live? Are you happy with your specialist? That's tough, with an unclear VNG result.

When you have vertigo, which way does the world spin - clockwise, or counterclockwise?

 

Erin,

Is your Dr. questioning her own diagnosis?

Your symptoms are very similar to mine, except I have only had three major vertigo attacks, all this year.
I have not had a VNG test. In your Avatar, you appear very young. How old are you?
You look too young to have Meniere's, but the symptoms are certainly there.


Jim

 

I don't think there is such a thing as being "too young" to have Menieres's. It's certainly much less common in very young people, but it does happen. I was only 17 when I started having issues. I know someone who also started having issues at about that age, and I've seen several people post here about having been dx'd in their early 20s.

 

Erin, I would suggest that you not do anything too drastic at this point, at least not until you have given less drastic measures a fair try--especially that you appear to be young. Destroying an ear is serious business, not something anyone should jump into too quickly, especially considering that there is no turning back and it's possible that something could happen to the other ear at some point in the future.

Have you tried any of the supplements that are talked about here? JOH, B5/B6, and other things that have been mentioned? Betahistine? Especially that you have just been recently dx'd, and it seems that your doctor is now questioning her dx. What other testing have you had to rule out other causes of your symptoms?

Please consider all this carefully. Good luck, whatever route you choose to take.

 

I was diagnosed just after my 21st birthday. Symptoms lasted about a year and then disappeared for about six years completely. Hang in there. Be patient. Learn everything you can. Start conservative and work your way up, if you need to!

 

I also have pulsatile tinnitus.

 

This is exactly what happened to me except I was prepping for a Laby. After the VNG showed a healthy vestibular nerve, my Doc started treating me for MAV and I jumped on the Buchholz diet. Bye Bye vertigo. It's been 5 months now. My left ear hearing is gone. Doc still beleives I have Menieres.

 

Read Buchholz, "Heal your Headache". It cost me about 10 bucks to download on my Kindle. I'm also on 25mg of Topiramate and a diuretic (1/2 dose), LOSO and various supplements. It was the Buchholz diet and MAV meds that eliminated the vertigo for me. I beleive the LOSO still has an affect on me as well. Example: DW and I went out for dinner last Friday. I had a pork chop that tasted like a salt block. 24 hours later I had some slight dizzy for a few hours. This is a pattern I have been able to repeat.

 

Regarding the direction of the spins - I think clockwise means it’s coming from the right ear, and counterclockwise means the left ear. But I’m not 100% sure on that.

 

Pulsatile tinnitus comes and goes. When it’s bad, I know vertigo is imminent. Sometimes is soft, sometimes it’s incredibly loud/powerful. Sometimes it’s gone. When it’s gone I am usually feeling good. I like having a warning for vertigo, even though the pounding is maddening.

 

How about yours?

 

Personally, I think it's better to add them one at a time. This way you can have a better idea of what is helping or not. When I have tried something new, I like to give it 3 or 4 months. If I haven't noticed a change for the better in that time, I've moved on to something else.

Also, try to identify anything that seems to aggravate your symptoms. There may be something there that you can avoid or control.

I've dealt with this for almost 50 years now, and sometimes I think I know more about it than the doctors do. I am not as bad off as many, but this still disrupts my life.

 

When I first started LOSO, I noticed improvement within a few weeks. Everything went back to normal. My hearing, no vertigo, pressure. Unfortunately, within 6 months, the Menieres progressed and LOSO has minimal benefits today. I can't say no benefits, but much less than initially at onset. I agree with CS. Try stuff and if it fails to help in 3-4 months, stop wasting your $$ and mental well being.