Nine and a half years fighting this dragon and right now I am still in my latest bout (they usually last 48 hours and we are on day four). I just have no fight left. I give up, I cannot do it alone anymore.
I am so sorry that this latest attack is being so vicious. Know that it will end. You can get through this.
DL don't give up I battled it for 48 years, you can do it! this attack will pass and there are many treatments you can try. Just hang tight and ride it out. You can beat this thing, don't let it beat you. Most find a treatment that gives them relief you can too. We are here for you, you are not alone.
You have fight left. You're just in a bad place right now. I've been there. Just the fact that you are reaching out and we are here for you may help somewhat. I'm so sorry this is such a bad time for you. Everybody is here to listen and help. ((( hugs )))
Do hope you have contacted your doctor--asked for something for the anxiety/depression you are going through. Most of us here have to have 'help' at times dealing with this condition. And also to let him know what's going on most of all. Something new may be offered to you, based on what's happening right now. Don't give up or give in--come here and get understanding--and I'm so glad you did! We all have to from time to time.
How are you doing now, Debbie? I've been there, too, a couple of years ago. I've been pretty vertigo free since then, until just these last 2 weeks. What's the hardest part about it for you? Do you have some good drugs to knock you out during the vertigo?
Ugh. Got another sudden onset vertigo a few hours after my last post. Found myself crying and begging God to allow my soul to leave my body. Still here. This too shall pass.
If I had to, I would take a double laby over vertigo and living in fear with my head in a toilet any day of the week. There are many people on this forum who have zero vestibular function in both ears and get on pretty dam well, let's say this, they don't come along very often and it is not because they are homebound, in fact quite the opposite, they are living life. I can still enjoy life using a hiking sick, cane or worst case scenario a power wheelchair to get around but at least I would be out living life with my kids, family and friends--- going to baseball games, swimming, movies, restaurants ect..... With 2 young kids, homebound with vertigo living in fear is not an option for me.
Debbie I am not sure if you are bi-lateral or not but I can say this if you have single sided menieres you can end the nightmare with a VNS or the gold standard Laby. I had the Laby Dec 11 2011 and have never looked back. I play golf go on vacations and what ever I want. Anyone with unilateral menieres should try the less conservative stuff for a short while then fix the problem as I did. The Laby gave me my life back. I wish some of my old post was still around so people could read about the dark place I was in. The great people I meet on this board helped me through some hard times and to them I am thankful especially Joe Lisa and David. Don't let menieres control your life have the Laby or VNS and get on with life. Now I got to leave to go on a Disney cruise with our grandson. PM me if you need to. Larry
At the bottom of the abyss, there we find our treasure Be strong, you will live to fight another day.
Thank all y'all for the kind words. Yes, I am bilateral. Most of the stuff helping folks is set primarily for those that are unilateral. My head is in a bit better place right now, however, I am still not wanting to fight anymore. I am not going to refill prescriptions or do anything to help. You live a good life and take care of your body and for what? You get a disease that no one can tell you why much less how to cure it. I am mostly in the apartment alone. No one comes to visit or even call to chat. I run monthly errands (not all at once) to the bank, market and drugstore. Only human touch I feel other than my own is when I see the doc or if I am on an errand and have a DA and someone actually tries to assist me to my feet. Sometimes I think if I had someone who would just take the time to come by and give me a hug even once a year, I might find some more fight in me.
It sounds as though this is a bigger problem for you than managing your symptoms and I'm sorry. It is sad to be alone and unwell. We're not built to live in isolation without the possibility to talk to someone, touch someone or be held when we need it. Your honesty is very real and what you describe is probably felt by many, many people who live alone and don't have anyone in their life to reach out to on a tangible level. I wish you peace, Debbie. I have no answers. If we lived closer, I'd visit you for sure. I've met with a few people from this forum and they've all been pleasant encounters.
Hey Debbie, you have just made a whole bunch of new friends here! And we are great friends because we actually understand Meniere's and can relate to your problems. What about spending some time at the Fun & Games section of this site http://menieres.org/talk/index.php?board=7.0 It is what it is, so you might as well have what fun you can and strike up some new friendships here. At least it will give you something to look forward to each day.
Debbie, if you click on the little envelope next to my name, you can send me an email. If you send me your email address I will add you to my list of people I pass on jokes to, if you are interested. With the Internet, you can have lots of friends and lots of smiles and virtual hugs.
Debbie, first I think you do have fight left - even if just a little. You must because you came here to reach out. That is a good sign. There are so many things that create a revolving circle - this disease can impact your life, which gets depressing because you can't go anywhere, and because you can't go anywhere you get more depressed...etc.. Whether it is other illnesses, Meniere's, life, work, family situations, loss, grief ..anything...that causes one to be depressed it is important to have a discussion with your doctor. If you can get help with that (even "one" thing) sometimes it helps to turn everything around because it gives hope. One of the biggest steps for me was when I started appreciating the really small things. Like: today my hearing was horrible, pressure extreme, ear ringing driving me batty BUT I didn't go dizzy. It is a good day. Before I started focusing on those pieces, I focused on the others which I couldn't change or control and it was impacting my life. Obviously I don't know everything going on in your life but if you are up to it, perhaps you could consider volunteering at a nursing home or children's hospital one day a week. That could get you more human interaction and probably make you feel some happiness because you would be helping someone else and you would feel that back from them. As others have said, this is a great place because here everyone does understand. Take care and don't give up. I just read a saying from an "unknown author" that I think applies. It said: On particularly rough days when I am sure that I can't possibly endure, I like to remind myself that my track record for getting through bad days so far is 100%...and that is pretty good." Your track record is 100%. You can do it.
Debbie, if you are comfortable to do so, can you tell us where you live? Who knows, maybe another lonely Menierian lives close to you.