Hi my name is Angie am 36 . I've been suffering with meniere's for a while, the doctors put me on Betahistine 8mg 3 times a day, took about 3 weeks to work . My symptoms had gone especially the dizziness which is the worst but the last two weeks it's all started up , so the doctor put me to 16mg 3 times a week. How long after upping your dose will it start to take effect or should it work straight away with me already having it I my system.
I went up to 24mg every 12 hours and that's when it worked best for me, but it's better to go little by little until I find the right dose. It takes several months for betahistine to take full effect, but since you were already taking betahistine before increasing the dose, it may work sooner. Be patient, I started to notice something better at 2 months, but it was not until 6 that I noticed that I was much better.
Thanks for the reply, I have been stressed alot also taking panic attacks, which a feel is making my symptoms worse.
Hi Angie, My experience with betahistine was great. Started at 16mg 3x a day and results were almost immediate, good results. After 6 months I started having more complications with mental focus so Doc reduced script to twice daily...worked pretty good. Now after another 8 months I switched compounding pharmacies and I noticed my MD reaction immediately worsen, dizziness. According to the compounders, it's not an exact science putting these pills together..sad..so....I discovered through all of this that there definitely is a correlation to my symptoms and level of medicine. Just gotta shoot for the right combo. Everyone's experience may differ a bit, keep on the hunt, stay positive.
Stress is a very important and common trigger in most of the vertigo attacks of people with Meniere. Control it, accept the disease and think that there will be more good days than bad, you will notice a faster improvement in your symptoms.
If what stresses you is to think that at any moment you will have vertigo, it helped me not to be so afraid to always carry two sulpiride pills (2x50mg) with me if the vertigo appears I know that taking them will pass quickly while I sleep. I always have two pills in my purse, on my computer table and next to my bed. If he comes back I'll be prepared, not like the first time. Ask your doctor about sulpiride and how to take it.
Hi Angie. In addition to the Betahistine, what are you doing in terms of diet and lifestyle modification or supplementation? By this I mean that people shouldn't rely solely on medication - MD appears to be a comprehensive disease of "imbalance".... like getting too much salt in one's diet, being afflicted by the effects of a (Herpes) virus, having an imbalance of microbes in the gut (ie. Candidiasis), gluten or other food allergies running rampant (a friend of my neighbour apparently got relief from her vertigo by going gluten free), vitamin deficiencies and hormonal imbalances... there is much that can be going on "under the surface" and we have to address this all too in order to really get control of this beast... drugs alone won't be enough for sustained success. The good news is that these forums are a gold mine of information on how to get back to a healthy place. You may be dealing with all this other stuff of course - this is more of a cautionary tale for the general audience out there who may be new and reading this....
IvanA IvanA thank-you for all your advice will say to my doctor. Ruby girl I am on a low calorie deficit diet now for 8 weeks I go to the gym aswell now , my salt intake is low and I dont drink alcohol. 100% think my trigger is stress a recently diagnosed with anxiety and PTSD, started therpy last week and the doctor is starting me on a low dose anxiety medication. Hopefully with upping me betahistine, dieting, working out and getting this stress under control I will start to feel better. Mike thank-you for sharing your story , I'm so glad your feeling better it's been a long journey for u ..
With post-traumatic stress, I am very confident that you will improve as soon as you start to control it. Keep living a healthy life and be patient, in a few months to see how you are doing. By the way if you have stress I recommend eliminating any excitement in your life from coffee or tea to horror movies or hardcore music.