How do you know if the gentamicin has worked?

Hey, Anne!

 

Anne! I have been off of the forum for so long because I couldn't get logged in. Gah! I'm so happy to hear your updates and have thought of you often, and all the group. I am glad you are getting in tomorrow it seems for your third injection.
I was doing pretty great up until I came down with covid. I had minor head movements that would give me a whoosh here and there and still some days with pressure. But not a lot. Since getting COVID in November, that included a lot of sinus pressure and loss of taste and smell, plus my ear tube came out shortly before, I have had frequent bouts of whoosh and 'oh shit' moments.
One day in the thick of COVID I was so weak and dizzy I had to go to ER. It wasn't vertigo as I knew it before though, it was just really off balance and weak, and I haven't quite recovered from that.
So, I asked for my ear tube to be placed again and the possibility of more gentamicin. Before my Dr. Huang will do anything she is making me do a hearing test and a rotary chair test to rule out it coming from my good ear.
To say I'm terrified is an understatement. I can take no meds and have to be MADE dizzy and nauseous.

I know the intention behind it is good but it feels like torture when the person ordering it has never experienced it therefore doesn't know the phobia and anxiety that comes with it. I'd much rather try my approach. LOL

 

Hey, Saera!

 

Hey Nathan, how are you??? So happy to be able to check in with you guys again!

 

In the swim, peachy keen, on the beam, up to code, hunky-dory, kung fu karate, & all that.

Sorry to hear you caught COVID & that your Meniere’s symptoms have amplified.

2020, right? In 2019 I remember everyone desperately yearning for the year to roll over & die so to give rise to 2020. Then 2020 came, & everyone was like 'wait, what?!'.

 

Isn't that the truth?? 2020 has been a shit-show for sure. Not that 2021 is looking much brighter, but we can hope.

Thank you. I'm praying that this rotational chair test won't be the death of me. I am terrified and keep having panic attacks at the thought. PTSD much? sigh....

Glad you're well!!!

 

AnneT I hope that at this point of time you are feeling better. You have been through so much. Any decisions as to a laby? I keep my fingers crossed for you.

 

This is amazing news Anne! You made my day. May it last forever!!!

 

I am considering the gentamicin shot but my ENT says that once one ear is taken care of the disease may migrate to the healthy side and it would affect my hearing in both of them.
Has anybody hear this situation from their Doctor?

 

Perhaps it’s a coincidence but… after the shot, my good ear started acting funny. I could hear own heart beat in it and I could feel the pulse in it. At that time my husband bought a CBD oil which I started taking . After a few days the ear calmed down and it has been back to normal since then.

 

Thanks for your comment: my ENT thinks that it's not worth to take the risk if in fact the disease end up migrating to the healthy ear. He said that a steroid shot every 3 months is more effective, but it's not good when I get vertigo and have to make an appointment and be miserable for at least 2-3 days and taking a lot of diazepam or sleeping most of those days. Anybody has that advice from his/her ENT? perhaps a second opinion is the best way to settle this issue?
Any feedback is appreciated.

 

Thanks, Anne, for you reply. Did your doctor mentioned the 10% or where is this information coming from?
I appreciate all your help