I would never tell anyone what to do, but I’ll tell you what I had to do. I was advised to salt load. Yep. You read that correctly. Clearly, there’s something wrong with the, “take your diuretic and stay on a low sodium diet,” mantra for some Ménière’s sufferers.
What have been the results of your high sodium intake and what was the theory behind the recommendation? I don’t seem to tolerate msg and preservatives but who really knows. I have been trying to make a food/symptom connection for 5 years!
When I was first diagnosed with Meniere's I was really fit/healthy, and receiving the advice to take a diuretic/lower sodium intake was a really bad idea. I've always had low blood pressure. Family trait. I did as I was told, but consistently over the first few years my labs came back with dangerously low Na+ and K+, and I felt crappy. Then, I passed out this past year. I was sent to every specialist under the sun. The best anyone could come up with was something along the lines of "autonomic problems," and the treatment is I just need more salt! I do feel better the more salt I have, not so sure about rationale. I, too, tried to find a connection between food and symptoms. Other than excessive caffeine, I never did. I don't eat too much man-made MSG, occasionally canned soup. I don't eat fast food. Barometric pressure changes absolutely kill me, I do know that much.
lysine ,C, and Acyclovir are good at suppressing the replication or supporting immunity but not necessarily killing the virus. I am now on Monolaurin 3 grams a day to start along with Essiaca tea and BHT to kill the virus. Good results so far (3 weeks) with some herxeimer (die off). Tinnitus already down 50% on average. This protocol is almost never reported on. Would love to see if any of you have heard of it or tried it. I will get virals tested each year to see levels. someone try this? please let me know the results
Jose, what type of Monolaurin are you taking and what is BHT? I'm very glad things are working for you.
I will add monolaurin, oregano oil and olive leaf. The bht i will not used it. I only use the JOH regimen and now will add those new one
Hi - I am brand new here. I was recently diagnosed with MD after having been told I have vestibular migraines for the past 3 years. Can you please tell me what the JOH regimen is?
Hi Can I ask what virals you get tested? I was tested for virus in my blood by my ENT doctor but everything came back negative. I was diagnosed with MD last year and am currently taking 4000 mg lysine /day and am seeing some results. Thanks
Hi all. I've just now joined the forum as a recently diagnosed MD sufferer. My tinnitus and ear fullness/pressure in my left ear has been present for possibly 2 years. I've recently started having vertigo episodes nearly daily for almost a month. My PCP assumed MD but suggested Nurtec in case it was vestibular migraines and gave me a few samples. The Nurtec has, on the three occasions I used them in the initial onset of vertigo symptoms, reduced the episodes from 1-1.5 hours to 15, 10 and 20 minutes respectively. He ran blood tests that only showed low iron and B vitamins. The leading(?) ENT in my area diagnosed MD after today's hearing test. Normal pressures now and also on my last test June 2025. Dramatically increased hearing loss and perceived inner ear pressure/fullness. I also shared with the ENT that the vertigo episodes increased in frequency to nearly daily after approximately 1 week on Zyrtec-D and Flonase (after switching from normal Claritin for seasonal allergies for years). The Zyrtec-D and Flonase cleared up a nasty bout of chest and sinus congestion that produced 'colorful' phlegm for almost 5 months. I'll add that switching to Zyrtec-D and Flonase also reduced my sleep apnea and snoring by at least 80% per my wife of 26 years. I also noticed lessened fullness in my ear and the tinnitus may have 'relaxed' some. ENT stated, without hesitation, that neither Zyrtec or Flonase would cause vertigo. If that's true, then I'll likely try Zyrtec-D again since I am now using Claritin-D with lackluster results. As expected, I got the low salt, Lasix+Potassium RX and suggested a follow up in a year. At the advice of a friend, I stopped by a local Naturopath on the way home. He suggested Kali Phos and Swedish Bitters diluted in water and drank b.i.d. and applied topically inside the ears on cotton balls for 4-5 days. That Swedish Bitters is not pleasant tasting at all. After finding the low sodium diet and water pill a bit disappointing as the only way to possibly reduce symptoms, I found my way to this forum. Once here, I found JOH and have been reading the amazing results of those that have tried his regimen. In preparation for appealing to my PCP and/or ENT for AV, I am hoping someone can point me to the good Doctor Gacek's medical article as the link found here (Recently diagnosed .... very confused and need help) is no longer working. Thank you in advance. jw
