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Hearing loss versus vertigo: treatment outcomes

Discussion in 'Your Living Room' started by JaneL, Apr 1, 2021.

  1. JaneL

    JaneL New Member

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    Mar 23, 2021
    Hi everyone

    I’ve been reading quite a lot of forum posts and I’m starting to think I see a pattern that people who first and primarily experience dizziness/vertigo/maybe slight hearing loss seem to do better on treatments (either medical or alternative) than those whose first symptom is blocked ear and substantial permanent hearing loss.

    What do others think about this? Is this your experience?
     
  2. Biffer

    Biffer Member

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    Jane, interesting observation. I certainly fall into the second category as my first symptom was blocked ear and hearing loss. But then, without the vertigo they would not diagnose meniers so I did not look for treatment for meniers until year later when the vertigo hit.
     
  3. JaneL

    JaneL New Member

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    Mar 23, 2021
    Thanks Biffer, how are your symptoms now with treatment? I’m also in the same category of ear issues first.
     
  4. Marta

    Marta Active Member

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    JaneL it sounds really interesting.

    My first symptoms was vertigo and I have had relief from EDB surgery.
     
  5. Biffer

    Biffer Member

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    For the past year I have had no vertigo attacks. But I live in a world of perpetual dizziness, sometimes worse than others. I feel it most when indoors. However, compared to vertigo... I can live with it.
     
  6. IvanNew

    IvanNew Active Member

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    I'm at this point too, sometimes I have days when I get dizzy for 30-60 minutes and then maybe I am a few days or weeks without dizziness. I can live with it even though it is not my ideal life dream.
     
  7. June-

    June- Well-Known Member

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    I have cohclear hydrops, primarily hearing loss and fullness, and I did great on antivirals and allergy treatment. Low sodium and diuretics did nothing for me.
     
  8. JaneL

    JaneL New Member

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    Mar 23, 2021
    Thanks June, do you still have the symptoms such as hearing loss after the anti virals?
     
  9. California Sun

    California Sun Active Member

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    I have taken diuretics on and off over the years. They help a little bit, at first, but then don't help anymore. Nothing else I have tried has helped in the least.
     
  10. June-

    June- Well-Known Member

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    No I do not have the symptoms any more. But it took several years to get complete relief. My hearing came back except for the very highest range but that is outside the range of speech so I don’t notice. Because I only have one balance nerve to start with, sometimes my balance is not perfect but it is good enough. I ride a bike.
     
  11. JaneL

    JaneL New Member

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    That’s amazing that your hearing came back! How much loss did you have? And how long did you have hearing loss for before it returned?
     
  12. jose suarez

    jose suarez Member

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    I have a question? With the mernier we loss hearing every time we got a vertigo? or hearing loss is something progressive with the disease? I mean if i dont have any vertigo im not suposed to loos hearing
     
  13. Biffer

    Biffer Member

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    From my own experience my vertigo attacks came at a time where my hearing in my left ear was bad but I'm not sure that is the case with everyone. I do not believe there is any "set pattern" with meniers sufferers. My hearing right now is not bad at all but I'm dizzy as hell most mornings and feel that if I am not careful I could bring on a vertigo attack. By that I mean no real sudden moves or spins. I may be wrong but I don't want to find out.
     
  14. June-

    June- Well-Known Member

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    Not in my case. I had cochlear hydrops which was almost all hearing related symptoms. I did extremely well with antivirals and allergy treatment. It has been 14 years now since the onset and I have been symptom free for maybe 8 or 10. Symptoms dissipated over time with treatment. Antivirals were the most important for distortion. Allergy treatment took care of the rest.
     
  15. TexOkie

    TexOkie Member

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    I lost my hearing and had tinnitus and full ear feeling in 1995. The dizziness didn’t start until a couple of years ago. My hearing loss is 40% but coupled with a 100% loss in comprehension. I can’t understand the spoken word, no matter how loud it is amplified. I also have trouble identifying sounds until I see the source of the sound.

    Ive been thoroughly tested for cardiovascular, vision, hearing & pulmonary issues. All of the doctors have been stumped. I’ve been asking the ear specialists about Meniere’s for the past year and each time it was shrugged off. That is until last month. I had an appointment with my neurologist for a follow up and I had recently had a fall that sent me to the ER where I received two staples on my temple. During our talk, I asked what was causing all the falls, and his reply was that the neuropathy coupled with Meniere’s made it hard for my brain to determine how to balance me. I was stunned. Someone had just said Meniere’s as a possible diagnosis.

    So, what’s the treatment? There aren’t any proven treatments. Imagine my deflation, to hear it was hopeless.

    Now I find this forum and JOH’s recommendations. My hope has been restored. Hopefully, his regimen will help me.
     
  16. jose suarez

    jose suarez Member

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    I hope it helps you, for me helps a lot. But tinnitus still there. I been using the regimen 8 months right now, my question is the hearing loss is something progressive or is something that ocurra only when you got a vertigo attack?
     
  17. Biffer

    Biffer Member

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    It seems to me that I read somewhere that every time you get a "ear fullness attack", when the endolymphatic hydrops occurs, a little more permanent damage may be done to the hearing in that ear. That would have nothing to do with vertigo attacks since, at least with me, the ear fullness does not always bring on vertigo. This would seem true to me as, over time, even when I'm feeling good and the ear is not full the hearing in that ear has deteriorated.
     
  18. TexOkie

    TexOkie Member

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    For me the hearing loss was immediately during my first attack in 1995. My hearing never returned, but subsequent attacks have not damaged my hearing any further.
     

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