Coming to terms with menieres

Discussion in 'Your Living Room' started by Laramy Black, Jul 27, 2021.

  1. Dixie

    Dixie New Member

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    May 6, 2020
    I was diagnosed with Menieres Disease in 1997. At first I thought I could not live like that. My vertigo attacks came on suddenly with no warning. They lasted for minimum 12 hours often much longer. I spun and vomited until I fell asleep exhausted. The uncertainty of when this would happen exacerbated my condition. The tinnitus was loud and 24/7/365. It still is. I have permanent hearing loss and constant aural fullness. My experience for 11 years was very unpleasant.

    I tried low sodium, no dairy, no gluten, no alcohol, no caffeine each separately with no relief. I tried antivirals which also didn’t work. I went on Serc (betahistine) and that seemed to lessen the severity/length of attacks. I was miserable and thought I couldn’t bear it. But I did.

    After 11 years the vertigo attacks stopped suddenly. I have no idea why. A specialist told me that my ear became so damaged from all the vertigo attacks that it just couldn’t work up vertigo anymore. I have no idea if that’s true. I’m still deaf, tinnitus still blares all the time, aural fullness comes and goes. Life is fairly normal, Covid-19 notwithstanding.


    I feel for all of you newly diagnosed who are trying to find your way through these horrible symptoms. It’s a scary condition to have. Hopefully you’ll figure out if you have any dietary triggers or allergies and learn to navigate. Maybe you’ll find antivirals are your answer. Surgery has helped many; it could help you. It will get better. Hang in there.
     
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