Hello! I want to share how I monitor my hearing in the affected ear .. I use the app "hearing test" and headphones. If anyone wants to share the audiogram.. Do before the crisis during the crisis and after the crisis These are mine
Yes for android from google play I will also use yours on a laptop Have you read about SPI-1005 for the Treatment of Meniere's Disease (STOPMD-3) ?
Yes, in 2016 a user already warned: New Drug For Meniere's - Clinical Trial In December 2020 they accelerated the protocols: https://menieres.org/forums/threads/spi-1005-fda-fast-track-to-stage-3-for-m%C3%A9ni%C3%A8re%E2%80 % 99s-disease-hearing-loss-and-tinnitus. 4002 / # post-87344 It is a very promising drug, but it is better not to get your hopes up on the same dates there was also OTO-104 and it finally failed in phase 3 this year: https://www.fiercebiotech.com/biotech/otonomy-fails-phase -3-adding-another-twist-to-ear-disease-saga In any case, SP-1005 can work to control symptoms and stop vertigo (the most important of course), but it is not a drug aimed at curing Meniere or improving other symptoms such as hearing loss or tinnitus. Obviously one would live much better without vertigo thanks to SP-1005 while waiting years for a cure or improvements in other symptoms.
Is it that hard? I still can't believe I've been suffering from this for 2 years. I became a doctor! I read almost everything related to this disease. How did someone not write that he was healed? Or cured just to stop writing? ... Vaccines for covid have been found ... and no one seems to care about the disease menier
Covid: Very infectious disease that affects the entire planet with a high mortality rate (for first world countries). Meniere: A non-infectious disease that affects a very small population and has a zero mortality rate. But more importantly, Covid costs the planet's economy huge billions of money, Meniere only costs a few million to public health services if your country has public health. On the other hand, Covid has one thing going for it when it comes to researching a cure. And the cause of the disease was known, that is, the virus, the first thing that was done was to isolate said virus and study it. In Meniere the cause is not known so there is still not something in concrete in which to focus the resources to fix it or find a cure, we fight against an invisible enemy. Genetic research is very promising and the EU has been putting money into it for a few years, led by the University of Granada (Spain): Rare coding variants involving MYO7A and other genes encoding stereocilia link proteins in familial meniere disease - ScienceDirect Granada, epicentro de la investigación de la enfermedad genética de Ménière And here are all the research projects that have been or are being carried out: MP12-Otología y Otoneurología - ibs.GRANADA
Yes it is. Quite interesting things. I hope they come up with something soon .. Maybe we should make some noise to be noticed. In the other topic I have asked you a few questions if you want to take a look at it. I have also shared notes with the crises for this year.
You can help by joining an association for the Meniere sufferer and convincing friends or family to become members as well. There are several in the world, if you have one in your own country that is the same but the best in the world I think it is the UK: Home - | Ménière’s Society The associations raise money to finance research, some of the research at the University of Granada was co-financed with money from these associations plus money grants from countries or the EU. Research - | Ménière’s Society Nor do I want to give you false hope, it is highly unlikely that there will be a cure anytime soon.
Thank you for everything! I had to talk to someone about the disease. In my city, only my doctor has 6 with this diagnosis. But I have not met them. The city has a population of 500,000 people. I used to live by the mountains, but I moved to the sea and then I got the disease There is no one in my family with such a disease 100 years ago. I keep thinking that the stress and dirty air in the big city has unlocked this. I discovered an allergy to pollen (wild wormwood, hemp, rye, etc.) after the flowering period, dizziness begins. Last year was 2 months with remission 1 year. This year from August 13 to 3 days ago almost every day ...
i have the mernier for couple of years, now this year begins bilateral, i been using the JOH regimen and i can said it work super nice on my, my last hearing test was in december last year i get one in october of this year and my hearing get better in all the sense, the doctor was surprise and I told him that im using this regimen and get surprise that ask me for a copy of the regimen to read. but im happy that the regimen works , no vertigos, no fullness, no dizziness, the tone of my tinnitus is lower .no heavyness on my head. i fell super good using the regimen
1. Have you tested for these viruses? HSV 1 HSV 2 EBV CMV I did a test and I have antibodies to CMV EBV. 2. i will try john mode. If there is an improvement, I think the drugs neutralize another virus .... What do you think? 3. Do you have an allergy to something? Or sinusitis?