Hello, everyone! I want to ask a few questions to compare symptomsn and the treatment.. My symptoms are: reduced hearing in the left ear Pulsating noise in the ear Filling fullness that appears and disappears Dizziness that is during the day or every day Lasting from 5 seconds to 2 and 4 hours On the go, at rest or when I sleep. After dizziness for a while I was drunk for 5 minutes 10 minutes 30 minutes The strange thing is that they appear several times a day ... I have been treated with betaser 3x1 24 mg and vertigoheel for 2 years Is pulsating tinnitus a symptom of a menier? Under Meniere, how long are your crises and how long do they last I do not use salt I do not smoke I don't drink coffee I don't eat sweets I rarely drink rose wine And I play sports Sorry if you don't understand I use google translate Thank you!
SPI-1005 for the Treatment of Meniere's Disease (STOPMD-3) Primary Purpose: Treatment Official Title: A Phase 3, Randomized, Double-Blind, Placebo-Controlled, Multi-Center Study to Evaluate the Safety and Efficacy of SPI-1005 in Meniere's Disease and Open Label Extension Study to Evaluate the Chronic Safety of SPI-1005 Estimated Study Start Date : May 2021 Estimated Primary Completion Date : May 2022 Estimated Study Completion Date : April 2023 SPI-1005 for the Treatment of Meniere's Disease - Full Text View - ClinicalTrials.gov
Hello Nikk! Meniere's dizziness usually lasts from 20 minutes up to 24 hours. That is one thing that makes it different from other forms of dizziness which usually only last for seconds to a minute. The fact that you have hearing issues with it sounds like Meniere's to me! Everyone experiences tinnitus differently so yes, I believe pulsating tinnitus qualifies. I don't know what Betasar is and Vertigoheel is a homeopathic remedy that may only work in people who are very sensitive in general to things (I have had no success with any type of homeopathic remedy). I suggest you look up the "JOH" or "John of Ohio" regimen on these forums for suggestions on other vitamins and herbs to be taking. That's a good starting point for most of us. Many people on here believe too that this is being caused by a virus. You might ask your doctor for an antiviral drug to try to see if it helps. Good luck!
Thank you Rubygirl I meant betaserc. sorry i use google translate... I started with john's method It makes sense. I have read about herpes in many forums. I personally have an allergy to pollen in August. Then the vertigo begins. Last year it lasted 2 months from August 20 to ~ October 20. After that I only have tinnitus, hearing loss and dizziness, but I have been drinking betaserc for 1 year. This year, after the allergy, the vertigo started again. For 3 months now. From the beginning, 1, 2, 3 to 4 hours were very strong. Every day! Now it's 5, 10, 20 seconds. 1 min with about 10 or 20 mn vestibular disorder (as drunk) I have noticed and present herpes (small white blisters in the mouth) on Monday I will do a full blood test for herpes viruses. A doctor told me to do some exercises. After them I always have an improvement. You can try them. The five Tibetans have a book or youtube. exercise 1 (21 turns in a circle with outstretched arms) 1 time a day. Do the other 4. It's not superfluous. The other exercises are in the yotube of the Russian doctor Shushonin Gymnastics for the neck of Dr. Shushonin without music Гимнастика для шеи др шушонина без музика I also take devertase ginkgo biloba extract and have less tinnitus What are your dizziness periods? Do you keep notes?
Hi! Yes, definitely sounds like a virus (Herpes) may be one of the causes for you. Please follow the John of Ohio regimen but it can take a few months to work. In addition, you may want to add glutathione and taurine (glutathione has been shown to help Meniere's sufferers and taurine is important to protect your hearing). I also suggest to look at your diet very seriously. You want to reduce your daily sodium intake to less than 2200mg/day, probably more like 1500mg/day. You also want to increase your potassium intake (Google a list of "potassium rich foods". Also, you need to learn what foods are high in arginine as this "feeds" viruses which then may be causing the vertigo. Arginine is balanced out by Lysine. So basically Lysine is good, Arginine is bad. You want to eat foods with a higher ratio of Lysine:Arginine. (Anything with a 1:1 ratio is fine but any food with more arginine than lysine, especially a lot more, is bad). Google "high arginine foods" (to avoid) or read about the "Herpes diet", or Google "foods with high lysine to arginine ratio". Mostly you will find pure protein like meats, fish, chicken are great but nuts and seeds (including nut milks and gluten-free flour) are bad. As for me, I have been working hard on my health and haven't had a vertigo attack in a while (next week will be 1 full year!) but before it was a few months of health then a cluster of attacks (averaging about 6 hours long) then months on, months off.... In addition to changing my diet as above, and taking my vitamins (JOH and above plus others) I am also seeing a chiropractor every week, and have consulted with a doctor to regulate my hormones (which were off). Hope this helps!
Thank you very much! I will try everything! I am motivated to live normally ... I have not consumed salt for 1 year 0. At most if I consume cheese or yellow cheese. I make my bread with normal flour. I'm thinking of trying without bread. I read a book on separate eating to prevent future pollen allergies, but I didn't know that about argenine. Thank you again. I notice that sometimes after a certain type of food I feel tension in the head area and the ear always gets louder. I'm sick and I want to go to bed. Another time a fullness in the ear is always a balloon full of water and the pressure bursts and disappears after a few minutes. And as far as I understand in other patients with Meniere after the release of pressure crisis follows. Not so with me .. The crisis occurs even when there are no symptoms other than a slight noise in the ear which is like an electric motor or transformer and is complemented by pulsation I can't hear him outside In the book of a Bulgarian associate professor T. Shirov "Meniere's disease" it is written that the noise in the ear is NOT pulsating quite strangely. Have you heard of burnout in google there in forums a lot of people say they had a "burn out menier" Some say it occurs after 2 or 7 years. Others are skeptical. Is it normal for dizziness to have several dizziness a day? And in short seconds or less than 20 minutes A chiropractor told me that meniere is not a diagnosis but a naming of something unknown that causes the disease. He also suspected that I had Bppv and did a manuover eplay since then I have not had more than 2 longer dizziness over 1 hour to 2.30 am Do you vomit in a crisis? I only once after a few months of remission and dizziness on August 13 3h with vomiting. Strangely, I will try everything possible. 2023 may have a cure for the disease currently in trial period. You can check in google SPI-1005 for the Treatment of Meniere's Disease (STOPMD-3) you can read on the developer's website. My English is bad so read on Thank you!
Well, you need some salt to live so if you have really cut down your salt you could actually be doing harm to your body. Definitely 1500 mg is about the minimum. But obviously there is more than just salt. Yes, when I have an attack I would often vomit. Horrible. It doesn't sound common for someone to have multiple separate attacks in a day. But there are so many different forms of this disease. I have heard of burnout and that seems hopeful but sometimes when the dizziness stops, the hearing loss is permanent so it's a compromise. I honestly believe that there is a viral component to it but along with that there is an immune system piece because the immune system is what would normally keep the virus under control. So anything you can do to help your immune system would ultimately help overall. I hope that you find some relief following the anti-viral Herpes diet (lowering Arginine foods). And that would be great if a cure comes in 2023! Until then all you can do is keep trying!
Thank you very much for the information. Obviously we need to treat ourselves. Doctors are not looking for an alternative. Just diagnose on some basis tests and treat symptomatically. No one has given me a virus test. Good to have this forum and to meet you. Thank you very much! On Monday I will run a full blood test for herpes and announce the result. Has your doctor prescribed these for you?
My dizziness lasted from a minimum of 1-2h to 10-12h. In my case, they also follow a gradual progression, that is, I start feeling dizzy and slowly it gets worse until everything starts to spin, it keeps getting worse until it reaches a maximum and then it slowly starts to improve until it stops after a few hours. I had fullness, changes in pressure bothered me (blows of wind on the window, opening and closing doors of rooms near me, etc.), hearing loss was my first symptom and after almost 4 years it has always been less, unlike other Menieres I have never temporarily recovered hearing, it has always decreased very slowly (40% loss in the right ear), the tinnitus was my second symptom, it started low and seemed stable after several months, so when my first vertigo appeared the tinnitus was hell came back (fluctuating, with moments of a very high pitch, etc). I also had fluctuating tinnitus in my healthy ear, but from what I was told if it is fluctuating it is from stress-anxiety (it is possible because my nerves were very bad at that time). What else? Ah, I also had very strong hyperacusis for almost a year after the first vertigo, certain sounds bothered me (shower water, plastic, certain voices, etc). It was also changeable, every day a different sound frequency bothered me. What happened to my life? Well, I have improved a lot although very slowly during the last year and now I have been 3 months without any dizziness or vertigo and stable tinnitus. The rest of the symptoms, except the hearing loss, are all gone. But I am aware that they will return, Meniere is a jilted lover who never forgets you.
Hello Ivan I'm glad you have an improvement. I hope he doesn't come back! Did you take a virus test? Do you have a pollen allergy or something? (sneezing snoring) Did you test for allergens? What medications do you use? Do you use the john method? Do you vomit when you have a crisis? Nuclear magnetic resonance? I drink betaserc 3x1 24mg, devertase (ginkgo biloba) reduces my tinnitus. The strange thing for me is that the crises are very "strange" Date - month- at what time the crisis was - how long the crisis lasted anti-crisis dimenhydrinate Noticing that there is no improvement with dimenhydrinate 2021 May 10 10:15 Dimenhydrinate 30 mn per foot July 2 2h duration 30mn 13 Aug 21 1h mn strongly with vomiting. 16 17 18 Aug x 3 Dimenhydrinate 23 Aug 2 hours dimenhydrinate 25 Aug 1min 30 Aug 2 hours dimenhydrinate 01 Sep 2 hours dimenhydrinate 09 Sep 20 mn per leg 1/2 dimenhydrinate 10 Sep 5mn dimenhydrinate 1/2 13 Sep 1h dimenhydrinate Sep 16 at 07h 5mn dimenhydrinate 16 Sep at 22h 2h dimenhydrinate 1/2 18 Sep at 17h 1h dimenhydrinate 20 Sep at 6.40 10 mn dimenhydrinate 1/2 (while sleeping) 22 Sep at 10h 20mn dimenhydrinate 1/2 22 Sep at 11.30 20mn dimenhydrinate 1/2 22 Sep at 21:15 5 mn 23 Sep 2 mn dimenhydrinate 26 Sep 21:23 1 mn - - - - - - - - - - - 26 Sep 21: 54 1mn -------- 27 Sep 7:13 12 mn dimenhydrinate 27 Sep 9:15 1 mn dimenhydrinate 27 Sep 11:31 1mn ------------ 28 Sep 8:50 10m dimenhydrinate 29 Sep 7.36 1mn - - - - - - - - - 29 Sep 11.21 30mn dimenhydrinate 1/2 30 Sep 16:10 20 sec 30 Sep 19:40 20sec 30 Sep 20:05 10 sec 01 Oct 12:40 5 sec 02 Oct 16:50 3 sec 04 Oct 10:21 1мн 04 Oct 13:35 1мн 04 Oct 14:20 1mn ------------------------------ Arlevert 20 mg 05 Oct 14:09 20 sec 07 Oct 12:10 2h 08oct 4:15 10m 09Oct 6:10 4 hours ****** Stop arlevert Start Betaserc 24mg Devertaza ginko biloba ----------------------------------------- 11 Oct 15:20 10 MN + 2H BPPV Oct 11 BPPV manipulation manuover Eplay 16 Oct 16:05 2:30 18 Oct 6:20 10мн 20 Oct 13:20 1 h 21 Oct 20:37 5мн 23 Oct 6:10 10 sec 25 Oct 11:30 10 sec 27 Oct 11:39 10 sec 27 Oct 13:47 10 sec 27oct 20:46 30 sec 28 Oct 5:41 10 sec 28 Oct 9:11 10 sec 28 Oct 11:47 1mn 28 Oct 14:55 3 sec
Did you take a virus test? Yes. Do you have a pollen allergy or something? (sneezing snoring) No. Did you test for allergens? No. What medications do you use? SERC, Sulpiride and Valtrex. Do you use the john method? Only lysine and vitamine B and D. Do you vomit when you have a crisis? Sometimes, it's normal. Nuclear magnetic resonance? Yes, you can't know you have MD without one.
By the way, in my worst moments my SERC dose was 24mg every 8h. Taking 24mg a day seems very little to me having so much dizziness and vertigo.
The doctor prescribed me 24 mg every 8 hours for 6 months. After 10 days of reception, the vertigo stopped. I continued to serc for about 10 months to take it after a severe allergy and a 2 month break came hell. 13 Friday August dizziness and vomiting about 4 hours. Fortunately, I have not vomited from a crisis and I have ~ 58 crises in 3 months. And before the disease, how were your nerves? Stress? Overload?
And before the disease, how were your nerves? Bad. Stress? Huge Overload? I dont know what means that.
Overload= Workload Fatigue Sorry for my bad Еnglish i use google translate I was also under a lot of stress. I worked in 2 places and got very nervous. The first symptom was tinnitus. After a few months, the noise remained in one ear and the first vertigo came