I was diagnosed with bilateral meneires at 20. Went through multiple hearing tests, steroids to get my hearing back, steroid shot to the ear, low salt diet, diuretic, no caffeine, alcohol, etc.) My ENT finally transferred me to a specialist at Ohio State! I had endolymphatic decompression surgery on October 1st. For the next 6 months they said I could still experience vertigo, tinnitus, and hearing fluctuations. I’ve only had vertigo once in the last month! I still have tinnitus but it is not as bad as it used to be, and my hearing is back in one of my ears (they only did the surgery on one side of my head but said it could possibly help both. So it’s just a waiting game). The surgery was quick, not too painful (only had to take pain pills for the first two days), and I was back on my feet the first week. I understand this surgery isn’t guaranteed to work for everyone but for me it was worth a shot. I will update after another few months, but so far I am pleased with the results! Most of all I just wanted to say thank you to everyone on here. At one point I was in a dark place and felt like there was no hope. That this would never end. All your kind messages and advice meant more to me than words could be even begin to explain.
That is very encouraging news for you! Well done. I know I could research it, but I'm pretty spinny right now, could you please explain what this surgery is and how it works.
I hope all goes well…Be SURE to update us as your progress. I as well have bilateral Meniere’s and have lost 95% of my hearing in both ears over 5 years. So…unfortunately a lot of us want to hear hopefully more of the good but even the ugly news in order to learn more
im bilateral too, but im using the JOH regimen, i still have tinnitus but the tone is less super less than before, no dizziness, no fullness,no vertigos no head fogs. i feel super much better than before. i have been using the regimen for a year now. I recommended