Update on the ENG test results

Discussion in 'Your Living Room' started by Lana, Jan 4, 2022.

  1. Lana

    Lana Member

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    Dec 15, 2021
    Boston
    Hello everyone, thank you for responding to my earlier post and providing your feedback. I am sorry for the second post.

    I received ENG test results yesterday indicating bilateral reduced caloric response in both ears that can lead to bilateral vestibulopathy. I have tried to explain the symptoms to my parents but they cannot understand and comprehend what this means for my future. They keep telling me that things will get better and that this will just pass. I have not experienced a severe vertiGo yet. How long does it take before it happens? Can someone drive with this? Am I obligated to report it to car insurance? My car lease is expiring in three months and I am not sure what to do.

    Stupid: In my desperation, I have shared news with neighbors putting myself in a very bad position where I indicated doubts over driving and they might report me to RMV in MA. Also I told neighborhoods that my life is over and that I will end up on a street. We do have business-minded people who owned a couple of units and might try to make things more difficult to live. The building is self-managed and the same people are on the Board.

    I don't know how to wrap my mind around this. I don't want to live life just to survive. If you look into my face now you would see disappear in my eyes. I am aware that as long as I have my job I am ok. Not sure how long my parents have to live. Once I lose my job and my parents are gone my life is over. I can’t survive as a homeless person.
     
  2. yellowboy

    yellowboy Active Member

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    Jul 11, 2020
    Like I said earlier, don't talk about your symptoms in front of strangers. You may not get much vertigo but even if you do there are drugs that help.There may be days you can't drive, so stay home. But on a good day go out get yourself groceries or just get the hell out of the house.

    I have not had a vertigo episode in 9 months and BAM Dec. 31 I got knocked on my ass, spent the day in bed. The next day I went out to dinner - alone.

    Don't take what you have left of your life away from yourself.
     
  3. teesdale

    teesdale Active Member

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    Oct 24, 2014
    Lana,
    Yellowboy summed it up perfectly. You sound as though you are taking the rest of your life away from yourself. No one is taking it away from you but you. I have had MD for 32 years and all of my friends/family and many people who are practically strangers know that I have it. I have never felt threatened but only sympathy and usually a willingness to help.

    Please do not look for trouble where it isn't. I am worried that you are putting yourself on a downward spiral and that can be much harder to recover from than Menieres.

    Do not fret about your license. The only time you would even begin to think about surrendering your license is if, and this is a big IF, you experience something called a Drop Attack. If you have to ask what it is then you have never experienced it. My one and only drop attack felt like the center of the earth sucked me to the floor. Luckily I was vomitting into the toilet at the time so didn't have far to fall. If you experience multiple drop attacks than you should surrender your license. So please don't worry about that.

    I strongly encourage you to seek out help. Whether a therapist, religious, trusted co-worker but someone that can guide and encourage you. Menieres can be a dark, dreaded experience but it also makes you appreciate more how beautiful life can be on the many good days we all experience.

    God bless you.
     

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