Most distressed to learn of this. Unfortunately, I have no new solutions or approaches. I'm hoping, as I'm sure you are, that finally all of the symptoms will abate, that the things you are taking will ultimately prevail. My best wishes and prayers. --John of Ohio
John, I'll keep you posted Hopefully, I can have a second time around recovery to share with others THANKS FOR ALL YOUR HELP!!
It happend to me, but i recommended stay with the regimen, everybody in this forum after they start the regimen all symptoms the first 2 day maybe feels worst, but I bet you you will feel amazing after a couple of days using the regimen. im using the regimen now for 2 years and i feel great. I still have tinitus but is very low pitch or sound, is not crazy like before.
That is encouraging thanks Jose. I am currently in my 6th week of taking acyclovir 800mg x 3/day. Unfortunately I am suffering from increased ear pressure and some nausea that has really gotten bad during the last week. I am continuing the treatment but not sure how much more of this I can take. Any shared experiences with this are really helpful.
Jimbo, I’m on acyclovir as well right now though my ENT prescribed 1600mg/day. I’m currently 12 days in with slight increase in ear pressure, but not a huge difference. Fingers crossed for both of us.
UPDATE: I sent my ENT the Dr. Richard Gacek paper and he upped my acyclovir to 2400mg/day and then following the same reduction as in the study report over the second and third week. Hope it works!
John, I'm hoping you or anyone else here reads this. So it's been 2 months on the regimen and today I feel like it's capitulating to the worst day ever. I can hardly type, making constant mistakes in my business, my ears are off the charts and I'm the dizziest I have been in these 2 months. I feel like my brain is completely scrambled. And to think on May 19, I flew to FLA for my daughter's engagement and was almost 100% fine for 4 days only to come back and get hit worse. So, I guess I'm asking is this the worst before better? Or was that supposed to happen earlier than this? I was never this afraid back in 2019. Thank you for your help just really concerned...sorry for any typos
Robert, I go back to my ENT next week for an audiogram and to check in with him about the antivirals (it will have been 7 weeks on 2400mg/day). Today I am not feeling well and my hearing is worse in my right (bad) ear. This cochlear hydrops is a roller coaster and I keep telling myself that on bad days like this to not despair and keep up the fight. My main goal is to preserve the hearing I have, but the ear pressure is my worst enemy. I most likely will reduce the acyclovir after these 7 weeks to 1600/day or maybe less, as it seems to increase the pressure in my ears. The audiogram is key to what course I will take. Good luck on your course of treatment and keep me posted.
As noted many times before, the herpes virus quite commonly becomes very active when being suppressed by an antiviral. Most likely this is happening. But in most cases, where this intensification of symptoms happens at the start (well, within months) of the antiherpetic therapy, it does not persist. The virus is eventually weakened, with welcome symptomatic relief. Very much hope this happens in your case. --John of Ohio
Jimbo, good luck on it all. I also feel increased pressure on the acyclovir and my ENT actually ended up following Gacek's study by prescribing it over a 9 week period reducing the dose by 800mg every 3 weeks. I just started it recently so I can’t tell yet where this is all headed, but I’m feeling better by doing something as the symptoms have been steady for a long time now.
Hi Ronven and others. I often experience this frustrating situation. Talking to a stranger or neighbor on the street I will often start getting dizzy, so I pretty much try to avoid that situation, unfortunately. It never occurred to me about the eye fixation, I chalked it up to a sort of "social stress" or anxiety, extreme focus. Hmm, next time I am in that situation I will try to sort of glance around and see if it helps. Does anyone else find these one on one situations to be a trigger?
One on one conversations and or being in groups of people seems to exacerbate the Menieres symptoms Eye contact definitely does not help Can anyone else relate or avoid that like me? Kind of takes you out of anything socially unless I have a break which I get here and there but no warning as to when that comes .
Hey John. With your regimen, is it necessary to spread the pills out over the course of the day? I tend to take the Lysine (3,000mg) all at once when I find a suitable moment (haven't eaten in two hours, not planning to eat) which has recently been 3am when I'm getting the baby's bottle ready. The lemon bios, MSM, vit C and E and vinpocetine, ginko, I take all in one go in the morning. Am I doing it wrong? Should I spread out the Lysine over the day.
This sounds like what is happening to me. About 8 days ago, I had a vertigo attack. Went home. Took some meclizine. And slept. The next day, I could barely hear anything out of my bad ear, and my good ear is stopped up too. So I order some Prednisone. The last day for that was Monday. I felt better that day than I had in a while. All day great. Then at the EOD, I had another attack. Went home. Took some meclizine. And slept. I woke up Tuesday (yesterday), and AGAIN, my hearing is crap. So now I’m going to order up ANOTHER prednisone. Basically rinse and repeat. It’s been years since I’ve had an attack. And never like this. Back then, there were bigger attacks, but they were farther apart. Since they started again at the end of June, I've had about 8 or 9 attacks of varying degrees of intensity. So on July 22, I started the JOH regimen. But it seems that since then, I've had ever-increasing attacks. I REALLY hope it's the Lysine working. But it's hard to gauge how long this should go on when the cure is worse than the disease.