I've had MD for 3 years. Had my first attack a month ago. Very interesting experience. Was dizzy for 2 hours before started puking and dry heaving for the next 12 hours until was in ER having fluids and meds in me. I made some observations that helped me during my next attack that came last week. I noticed a correlation to childhood (under 10) experiences. I would wake up at night delirious, head spinning, and everything moving too fast. Same feeling I had during my MD attack. Wake my mom and just ruff it out until my system settled down. When I was waiting I remember tell my mom "slow down, Speak slower" everything seemed to spinning and moving very fast. All I could do was sit and wait until it settled down. After awhile I realized all I had to do was sit in bathroom on floor with lights on eyes open and within 30 minutes things usually settled down and I went back to bed. I surmised that my brain and eyes were out of sync. It took me sitting in the light to get them back in sync. Also when I was young I couldn't ride and merry-go-round without getting dizzy and sick. Each time I would get dizzy my eyes would start rapid side to side movements. I would try everything possible to get over this. If I closed my eyes I could do it. If tried to only look straight ahead I could last awhile. Again I surmised that my eyes were moving too fast for my brain to keep up with. During and after my first attack I made some observations: -Everything was spinning -light hurt -By the time I went to the ER I was squinting my eyes to the point of looking through my cupped looking at only a pinpoint spot on the ground to follow as I walked to the car. - the doctor had to make me uncover/pry my hands away and open my eyes....and when I did he said my eyes were jumping back and forth horizontally very fast. - it took me 2 hours to get from the bathroom to my bed. I kept moving a few feet then stop/puke/passout/sleep and wait until everything slow down so I move again. What was really happening was when I was sleep/passed out my eyes were closed and my head wasn't moving. So everything stopped spinning. Only when I woke up/opened eyes and start moving my head did I get overrun with dizziness/nausea and would only move a few feet before I'd had enough and stop and sleep/pass out and repeat. I'd come to realize my issue seemed to be my brain and eyes were out of sync. When I tried to open my eyes they were jumping back and forth too fast for my brain to keep up with... so I got dizzy. Same thing on the merry-go-round, my brain could not keep up with what my eyes were seeing. This last attack I had I prepared. I bought a sleep mask. When I felt my attack coming on I took some anti-vert, a valium, and a nausea med. and put on the sleep mask and got in bed. Sure enough the attack got bad but I didn't have any of the puking or spinning. I felt normal. Carried on conversation with wife. Actually did a pre-op phone conversation with a hospital. In knew I was deep in an attack because all it took was any (the slightest) head movement or lift the mask and I felt a wave of nausea roll over me. After about 7 hours into this attack I actually got up (with mask on) and walked to the bathroom. About 9 hours into it I was able to remove mask and eat a little food. I've come to realize when an attack hits I need to cover my eyes and try not to move my head at all. Valium helps with this. Do know if I just got lucky but I'm going to be prepared for the next one. Has anyone else made the observation?
You can look up my other replies, but I found Odansatron (my lifesaver vomit pill) would stop the attack. As soon as I felt disequilibrium, tingling down my face, the vomiting would come. If I took the vomit pill as soon as the vomit urge came, it stopped the 12 hour attack (similar to what you experienced- dizzy face tingles, sensitivity( to sounds, smells, light), eye movement, vomiting, super vertigo. Since taking it on three different occasions, I have not had an attack and overall dizzy feelings w/o the full on attack has now diminished. I think the pill stopped my body in its tracks. Thank God. I was having the attacks 2-4 times per week. Thank you for detailing your experience. No one here seems to share that. Now, I know you have and I’m not alone. Also, I’ve been attempting to remember to keep to the JOH regime. Look forward to hearing from you and others. Be well.