I was just given a diagnosis of MD last week…I am trying to wrap my head around it. The ringing, the whooshing, the loss of hearing…I’m having trouble dealing with this. Vertigo is under control, but I am not sure I can deal with this. It’s driving me nuts! Suggestions are not only welcomed, they are sorely needed.
Hang in there two of us (including me ) on here are in a drug trial for Menieres hopefully available soon
Welcome Chris! There is hope, this forum has people with Ménière’s living a normal life. You can too!
Hi Christopher, you can help yourself a lot by trying to calm down in an acute phase. There will bei better Times. Your body is very stressed. Do calm things. Breathe. Sleep as much as you can. If you can't sleep, try headphones with masking sounds. My nightly ritual is Tibetan bowls with thunder and lightning. Get a massage, especially neck, head and shoulders. Find a doctor your trust. Hope you have supportive people around you. Best wishes Lilja
Hang in there, Chris. I've had this beast for 33 years. I am symptom free for 14 months now and I am hoping it continues ad infinitum. I recommend keeping a detailed diary of your symptoms and treatments. The JOH regimen helped me for years starting in 2008 and now I am on a modified version which includes the prescription valacyclovir. Your are lucky to have found this site early on. I went from 1990 to 2008 before I found this site and it has been a game changer for me. Best of health to you!
Chris, I've been there and I am still there - hang in there and give yourself time to process it. Your body is physically and mentally reeling - I get it. But know that there is hope and as you work to stabilize your condition, keep reminding yourself that it was a progression of underlying causes that resulted in these symptoms and it's likely going to be a long progression to stabilize and then (hopefully) recovery a bit. It's been 8 months for me since my world completely changed (there were less obvious signs for a year prior) and I still have days where I wake up and think "why me? How did this happen to me"? But in the end, it's not productive and changes for the positive are not going to happen day by day, they'll likely be measured week by week or maybe month by month. So I recommend, reading here and formulating a plan. In part it's how I cope - by taking action even if some things I've tried didn't seem to work. We are here for you, ask your questions. Vent. Whatever you need.
That fucking illness suck, am gonna refrain from commenting because am obviously having a bad week and very negative. Make me soo hangry i want to destroy everything. But after 14 year i know that better day are coming, just a matter of going through this path for now without thinking about it too much.
Just to clarify, am having other health issue beside meniere, and with my dad who have cancer its kinda hard. Dont lose hope because of what i said.
Hang in there Christopher and embrace the people on this site!! They are amazing and have helped me more than they could ever know and they can help you to. All it took was one voice of support and it continues to save me. Most doctors will disappoint you because they do not understand this disease, i've trusted them for over a month now and now I am done. Take the advice from the members on this site and and use it as support. I feel the same way you do... Why The Hell Me??? I have a mortgage, a family where I am the bread winner and yes it is overwhelming. I consider myself lucky because I have avoided the vertigo but have everything else I have. Hang in there!!
Hey, you can help yourself. You can take advice from the members of the site, and they are all willing to support you.