Hello all. Small introduction from me, I’m 37/M and have been living with these symptoms for over 6 months now. Just appeared from nowhere, hearing loss (low frequency), aural fullness and mild tinnitus in one ear. The one thing I don’t have is any vertigo/dizziness. I must say at this point how sympathetic I am reading accounts of some of you who have had to deal with this really disabling part of the disease. After about 3 weeks, seeing a doctor having been prescribed prednisone and betahistine, my symptoms stabilised and since then I’m left with recurring/intermittent symptoms. Often I can go for a week or so with nothing and then il have a day where my symptoms flare up, stay for a few hours or the rest of the day, then it will go away the next morning. On a follow up, the ENT has unofficially said I have menieres but never did the ECog test as I don’t have vertigo it’s not critical that I be formally diagnosed. My one worry reading other people’s accounts, is how prominent the vertigo element is and if there are people here who continue to go on and never experience vertigo attacks. I am constantly anxious now, wondering if it is just a matter of time before I will get it, or whether it’s possible that I could be in fact lucky to ‘only have cochlear menieres’ . Should I eventually succumb to vertigo attacks, I’d almost certainly lose my job, which is safety-critical in nature and that would put immense strain on me providing for my family and paying the mortgage with loss of income. I guess I am looking for some reassurance if it is at all possible that this is as bad as it gets for me. Anyways, thanks for taking the time to read my message. If it resonates with anyone, I’d appreciate any feedback. kind Regards
I usually had a bit of warning before full blown vertigo, such as extreme fullness and much decreased hearing. I don't think it is inevitable, but you should probably make a plan for what to do just in case.
Hi Blueiron, as I had about to years with episodes of hearing loss and fullness of ears, the doctors called it Hydrops Cochleae. This is what you experience, right? Statistically, only ten percent get the full blow of MD. That is what I have been told. Good luck! Try to work against and stress. Salt reduced diet, no junk food and enough potassium. Best wishes Lilja
hi, thanks for your message. yes. Basically everything but vertigo. When you say you had two years… was that two years with those symptoms and then you developed vertigo? If so, I’d like to express my sympathy for you, but would also be curious to here whether you would have done anything differently in order To prevent the progression into full menieres…. kind regards
Yes, first HC, then rehab and three weeks after the rehab the first vertigo attack. Would I have done something different? My mistakes began 2013 with a toxic relationship. I should have been gone earlier, not have moved with him to a scary lonesome house where he left me alone. The doctors in the rehab warned me that his behaviour was not normal, that they (also) thought he had something to hide but then it was too late. Too much stress for too many years, too much anxiety. Too many nights without sleep waiting for a drunken man coming home. I had no support and tried to carry on though I felt so miserable. Avoiding a toxic lifestyle in any way, that's what I would recommend.Have a good doc and people who love and support you. But as the cause of MD ist not found yet, who would know what to do? Best wishes Lilja