What is the usual dosage in the beginning of valtrex for mm and ch ? Not long term or maintenance but initial dosage please.
Yes i am, last week after years of remission. I thought i was cured. That is the dose my doctor gave me but i wanted to make sure, it seemed very high. I disappeared from the board when my husband became ill a few years ago. I hope familiar names are missing because they are doing well.
Well I am sorry that you are back, June. I too thought I was cured and had a few years of clear sailing. I have taken twice that dosage with no known harmful effects. I don't know what caused mine to come back, but it could have been too much arginine in my diet. My wife was making a lot of muffins etc using almond flour. But, that is just a guess. Do you have any guesses as to what brought you out of remission?
A woman came to my house and she had on a scent, powder, perfume? I dont know what, but every time i went near her my ears clogged up and when i walked away from her they clelared somewhat. And it was bad from then on. Or was it bad before she got to my house? I dont know but the rest of the population didnt go deaf so it was something in me ready to go haywire. Maybe it was those two days i didnt get enough sleep. I am visiting in a different climate than i live in but where i used to live when i first developed CH, so maybe that? I suspect it would have happened at some poi t anyway. Like shingles. It just picks an opportune moment and reappears.
If only it was really like shingles - there's a vaccine That smell may have sort of reactivated the problem, on top of poor sleep etc. I think we can usually handle one trigger, but when they gang up - not so good.
I’m sorry to hear that, June. I hope things get back on track for you. I have a post here which explains what I did after years of anti vitals and vitamin regimens that ultimately did not work for me.
At present I have no vertigo, but i do have enough distortion in my only hearing ear to make navigating the world difficult.
June, I've been thinking about your case, and it's left me very curious about your inflammatory trigger. Maybe the connection is something we're not catching, but assuming the perfume was the trigger, I think that's worth investigating, and I would love a professional explanation for that. Presumably, you may have developed a new allergy to something in the perfume, leading to an environmental hypersensitivity that is manifesting in the inner ear. But, for it to switch on so suddenly is curious. The "haywire" hypersensitivity you describe makes me think about migraine triggers. I saw an orofacial pain specialist for what I suspect is some form of (vasomotor?) rhinitis, where my nasal cavity and ears will become inflamed at seemingly random times. It's speculated my sphenopalatine ganglion may be overreacting to stimuli. Similar to your relapse, when an episode appears for me, it is a switch I cannot turn off for months as symptoms spontaneously blaze. If you are unable to define a new allergy, I think it's important for the Meniere's research community to consider how stimuli to which the patient is not allergic can cause a chronic inflammatory response.
i went to an ent today. My current hearing loss is the opposite of that i had with my original case in 2007. I am holding the low frquences at 25 but had a huge drop off in the upper. The curve is the exact oppositie of before. I am not 100 % sure if it started in this range or changed based on how voices sounded in juky and now mens vs womens etc. i think it may have changed. I am going to go off the valtrex and see if there is any chance that is affecting anything negatively. I am going to see an allergist soon. Maybe this isnt hydrops? The ent offered me a steroid injection. I deferred til i see if the glaucoma dr approves and if i have any spontaneous improvement. I am not sure hat is going on. I do know i was told people often regain hearing in lower frequencies but not higher ones.
June, great to hear you've seen the ENT. 1) Did they have any thoughts on what caused this? 2) I, too, am diagnosed with cochlear hydrops, and my SNNHL has always been high frequency--especially extended high frequency, though my condition did start with bouts of low-frequency distortion (diplacusis). I do understand that high-frequency loss off-the-bat is atypical. My neurotologist at the House Ear Clinic still believes Cochlear Hydrops is the best diagnosis for now due to my positive reaction to steroids. 3) I highly doubt that Valtrex would have caused the hearing loss, but by all means, it could be worth stopping it for a bit. It is also conceivable that the virus you may have been suppressing built up resistance to the pharma, in which case, stopping the drug for 1-3 months and then restarting should hopefully reset the treatment. 4) Absolutely consult with your other doctors, but as you probably know, I would encourage steroid use sooner rather than later to try to recover this loss and reverse the damage. Intratympanic is fine but orally is also quite effective. There is usually a 1-2 week window to act before steroids are ineffective.
i know that i was told low frequencies are often recoverable and mine was after a year. I know i was told high frequencies are not usually recoverable. But you are saying that you sponded well to steroid shots? Meaning you recovered your high frequency hearing? Did it require multiple shots or was the improvement permanent? Did you have any problem from the hole in the ear drum? I had the sudden hearing loss july 19 two weeks and a day ago….. i have glaucoma and that is part of my reluctance. I wont see that doctor for a couple more weeks.
Yes, so far, I have always recovered all of my high frequency hearing, by taking Prednisone as soon as possible (sometimes hours) after the hearing loss occurs. I have only ever taken oral prednisone and have never received steroid shots.
thanks, it never worked for me when I had the low frequency loss, but this may be something different