I have been taking Acetazolamide for about 3 years as prescribed by my neurologist and now I have Kidney Stones in both kidneys and my bladder and a calcified gall stone in my Gall Bladder. My urologist thinks the stones were caused my Acetazolamide. Just for your info. Any one else have this problem?
I was only on Acetazolamide briefly, about 3-4 weeks. In that time I had what I think was my worst attack yet. The ER Dr. advised I take it once a day instead of 2x. This seemed to help, except I had a consistent feeling of my head being under pressure. I thought it was a reaction of taking methylpredizone and the acetazolamide. I missed a dose one day and after taking the regular (1x daily) dose the following day I noticed the pressured feeling about 0.5-1 hour later where turning or moving my head made it worse. It felt like I was heading towards the attack that I had had a week prior. My doctor was not convinced of my concerns but nevertheless put me back on the diuretic I had been taking previously. This whole experience was a huge let down and made me feel like I was going backwards in the healing process. He said many people had success with it, but I don't think I am one of them.
I took it for a few weeks, just keep the doctor happy, that I’d tried all the medical options before going onto gentamicin injections. I was pretty sure I wouldn’t tolerate it, as I have Postural Orthostatic Tachycardia Syndrome. I used to keep it in my purse, to take as needed for high salt meals (restaurants), but it gives me a funny taste and unpleasant tingling.
My Ent just gave me these to try again acetazolamide 250 I never took them 4 years ago but since my ear fullness and tinnitus got more intense I might try it see how I do in a month. You only stay on it for 6 months. Will see how far I get. But doesn't look like to many people have any luck with it.