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Brain fog and strong fatigue/easily fatigued?

Discussion in 'Your Living Room' started by EAOfficial, May 22, 2024.

  1. EAOfficial

    EAOfficial Member

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    So I've probably got an atypical Meniere's where HSV-1 attacks the vestibular nerve instead of the cochlea, leading to a repeating vestibular neuritis. Best theory by ruling everything else out

    Since what may have been my fourth attack (upon which I finally started taking the antivirals consistently) about 6 weeks ago, I've been very fatigued, with lots of brain fog all the time. I feel very very weird and depersonalized all the time except the last 2-3 hours of the day. I need to start a new career and I'm worried about even being able to work. Functionally I'm OK but I haven't been doing anything super complicated.

    My sight/focus also feels weird as hell, like my view out of separate eyes splits my reality into two halves. It feels very odd trying to focus on things far away.

    I used to work out hard every other day, biking or weightlifting. But now I'm too tired the day after

    Does anyone get symptoms like this? Will this ever go away?

    Dr. Gacek says that initially you're messed up because of the neuroinflammstion, but all 3 other attacks I didn't feel this bad for this long. Should I finally try the steroids he gave me anyway?
     
  2. Donamo

    Donamo Active Member

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    I do get feelings similar to what you are describing, only to a much smaller degree than you. Yesterday I was a basket case of tiredness but, like you, felt much better towards the end of the day.

    I don't have an answer as to why, but I am suspicious about electrolyte balance/hydration/??

    In general, I am doing pretty darn good, which I attribute to my Keto diet. I do feel like I am not as physically fit as I should be despite being quite active.
     
  3. JanieJiffy

    JanieJiffy Member

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    I get similar symptoms of depersonalization and brain fog, as well as a floaty unbalanced feeling. I feel best in the mornings, lousy all afternoon and then I perk up around 6 p.m. It seems like the full feeling in my left ear spreads to my brain. Its even affects my attention while driving. And I get tired more easily than I used to.

    But since I started an anti-inflammatory diet that also evens out blood sugar throughout the day, I haven't had any dizzy attacks-- that's been about a year free of vertigo now.
     
  4. yellowboy

    yellowboy Active Member

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    I am tired all the time. But that said I have to take a pill to stay asleep.
    I would be fine with not waking up some morning - the only way to peace and quiet.
     
  5. Mr. Dutchie

    Mr. Dutchie Member

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    Hello everyone, I can relate to this as well. My ENT specialist recently diagnosed me with a typical definite bilateral Meniere's disease. I experience symptoms like brain fog, dizziness, and sudden drop attacks too. While these issues are troublesome, what affects me the most is the constant fatigue. Simple tasks leave me completely exhausted. Even though I complete these basic tasks such as the weekly shopping, they lead to extra hours of sleep once I make it back home. I refer to it as sleep, but it feels as if I've been drugged and must lie down. This often occurs alongside nystagmus. It's frustrating that many doctors don't consider these extra problems as part of Meniere's. It's reassuring to know we're not alone in this. In my opinion it would be could if these additional effects where added as potential side effects of Meniere. I also want to mention that one thing that really bothers me is that I often walk as if I am drunk, even though I don't drink at all. It makes me uncomfortable when people stare at me because they think I am drunk. My ENT has told me that my balance is affected and they are unable to fix this, more specific he exspects that this gets worse overtime. This is stopping me from going out as much as I'd like.
     
    Last edited: May 23, 2024
  6. JanieJiffy

    JanieJiffy Member

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    I know what you are talking about, even though my dizziness is controlled, I have been left with a floaty feeling which is especially bad in the semi-dark but actually better in complete darkness. I think the balance centers in our inner ear have been damaged by the inflammation. It also seems that our neurological systems are put into overdrive by the constant confusing signals, which may be the source of our fatigue. I also notice intermittent tingling in my lower legs and the left side of my face.

    The floaty feeling is worse when I first stand up after sitting. I have to explain to people that I have an inner-ear disorder.
     
  7. Mr. Dutchie

    Mr. Dutchie Member

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    Hey JanieJiffy, I can totally relate to your experience. I've found that in low light, my brain gets mixed messages from my vision, inner ear, and feet. But when it's completely dark, things get a bit better. I agree that it can be overwhelming and tiring, sometimes leading to vision blackouts, drop attacks or feeling dizzy. Personally, I've noticed my hearing can drop to 80dB hl loss in these cases, which confuses my ENT doctor because it can return to normal after a few days. I'm grateful that there hasn't been any permanent damage so far it seems, even though it doesn't quite match the typical Meniere's pattern. The same ENT does say that my innerear balance is permanently affected due to the issues in darkness. This again is odd since during the Vhit test and coloric testings everything looked fine. During the whole diagnoses trajectory I often started wondering about my self.
     
  8. JanieJiffy

    JanieJiffy Member

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    No problems with neuropathy in your face or extremities? I don't know if this is part of the Meniere's or something else, or a generalized neurological condition (maybe autoimmune) that originally caused the inner-ear damage.
     
  9. BradyT88

    BradyT88 New Member

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    I relate to this during some of my attacks. Particularly my attack going on right now that started on Monday. I got a really poor night's sleep Sunday night/Monday morning and I thing it contributed to this. Luckily I don't have any vertigo/dizziness or nausea going on (I take Triamterene daily which seems to help). But I'm just really tired this whole week. I feel like my balance is almost lagging behind and I have that floaty feeling. I struggle to focus or thing too hard about things at work (which can be difficult since I'm an engineer). During these times I just don't want to interact with anyone, not even my family. It's an odd feeling. Some of it is because my hearing will plummet and communicating is difficult and maybe on another level I just don't have the mental energy to have social interactions.

    My attacks seems to be on about a 3-4 week cycle. I tried low sodium for about 6 weeks but that seemed to make my vertigo come back and going back to eating large amounts of sodium made it go away again so I think I'll stick to sodium.

    I left work yesterday to see my ENT for a steroid injection in my ear. The last one I had worked wonders. This one seems to be helping but not as much as the last one.

    I find it interesting how everyone's MD is similar and yet very different.
     
  10. Mr. Dutchie

    Mr. Dutchie Member

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    Brady, I can only speak for myself, but I agree with you. Meniere's disease is draining, leading to irritability and social withdrawal due to hearing difficulties in gatherings. Initially asking for repetition, I now tend to avoid such events whenever feasible. Attending social events can be challenging, and despite my efforts to push myself to go, I often find that I miss out on too much and end up feeling completely drained as a result.
     
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