I dont take anything anymore. I went into remission over a year ago and stopped taking JOH. I should probably maintain a vitamin regime but havent comitted to anything as of yet.
i just came here to comment on my experience -- i tried this for 3 months and didn't notice any difference in any symptoms. oh well, worth a shot.
When I first started having Ménière’s I was told I had water behind my ear drum so I’m thinking the water theory is correct. Another think I found to be very hurtful for menieres is Ibuprofen. I was taking it daily for bursitis and it almost totally took my hearing away with tinnitus. It cleared up in 2 days of me stopping the Ibuprofen.
I also take magnesium. I’ve had hearing loss in my left ear since childhood so preserving my hearing that’s left is important to me. I’ve had one vicious attack in June and mostly a little vertigo with bad tinnitus. I also read that you can get eczema in your ear canal which can cause similar vertigo and tinnitus with nausea. I’m going to talk to my dr about this.
LOL, probably true! But sometimes, some people, have some success and have some control over the beast and live a somewhat normal life.
My daily symptoms are ear fullness and tinnitus with many days of sound sensitivity and occasional vertigo attacks. 2 horrible attacks this year that last hours, make me nauseous and leave milder vertigo behind for days. I've had MD for under 2 years and went the first year without big attacks, but had often unsteadiness. I've been doing the JOH regimen since March and had the big attacks in June (heatwave while traveling) and October (during Covid-19). I believe the Vinpocetine 10mg 3x day helps the tinnitus stay bearable, but the fullness is constant and sensitivity regular. I started Pycnogenol (a study shows this helps and is also noted in this group as helping some) and a b-complex with 100mg of the b5/b6 this week. BennyHill noted that in the U.S. the 100mg complex should be enough. Hoping to post good news soon, but I don't think the JOH protocol is going to help me, 9 months in now and no real changes. Good luck!
I started taking B5/B6 in June 2019. In early 2022 I began developing weird symptoms of tachycardia and anxiety which I attributed to Thyroid. Last summer I read about B6 toxicity and tested my B6. It was 1 1/2 times the high range. I stopped the B6 and make sure B6 is not part of any supplements I take. Watch my diet. I am feeling better. Even though B vitamins are water soluble, B6 is retained in muscle tissue. Just be aware.
Thank you! I have other health problems, including heart related, and certainly don't need more. I'll need to consider this more carefully and keep a very close eye on things, especially if I decide to continue with the B5/B6. I wish I saw more testimonials of people who definitely found help with it. The JOH protocol seems to have more success stories, but it's been 9 months and no change.
Hello PA Cowboy, I've started antivirals, but my doctor will only use the US study and prescribed 3 a day for 3 weeks, then 2 for 3 weeks and then 1 a day long-term. How long did you do 3 a day? Thanks.
On my insistence, the Doc continues to prescribe 3 a day. Started in March of 2019 and continues since then. That would now be 6 years next month. No problems...at all. I'm never going back to the bad days and antivirals did the trick.