Hello everyone, Since 2010, I've had unilateral hearing loss that began as low-frequency hearing impairment in my right ear. By now, the ear is consistently severely damaged. Strangely (but fortunately), I've never experienced vertigo. However, I constantly have pressure in the ear, tinnitus, and hearing impairment. Does anyone know this condition (the doctor calls it "atypical Meniere's") and know what might help? I think it's related to a jaw misalignment, but the dentist can't fix it. Medications like Betahistine have not helped, and a salt-free diet had no effect. Currently, I have a strange echo in my ear with loud sounds or rapid head movements. Does anyone know these symptoms? Is there perhaps something that might help? Has anyone successfully had a tympanostomy tube inserted and experienced an improvement?
Cochlear hydrops perhaps. I have it in my left ear after having endolymphatic hydrops in my right ear, which caused the vertigo. No vertigo with cochlear hydrops. Had a laby on right ear, which removed the vertigo.
New to forum. Diagnosed in 2011. Episodes are currently happening about once a year, but had one period lasting about 3 years with no symptoms. Episodes now last (from beginning of episode till time I am fully functioning) about 2 1/2 days. Episodes have always started with throwing up. I have severe hearing loss in left ear. The sudden hearing loss was the event that triggered my diagnosis, although throwing up started about 6 months later. My recent event seemed to be triggered by my ears popping on a trip involving going to and from a destination with an incline from about 4000 ft. To 6500 ft. I had made the same crossing two times before within a period of about a month, and had experienced the ear popping but no Meniere's episodes. The only two things different about the trip was more walking than usual (I now use a walker to walk) and heard some very mild distressing news, although I am in a stressed state due to facing a complicated move and I am 81 1/2 years old. This was a rough episode which I now feel afraid for the next 3 or 4 times I have to make the same trip. I am going next week and will try chewing gum, and taking an antihistamine. I would be so grateful for any advice about anything anyone thinks I should take, or do, to combat anything that might bring on an episode. Thanks for reading this. I am so glad to be here.
Thanks for your replies. It seems that cochlear hydrops is very related to menieres. I was hoping for a wonder and find someone who has found something that can help. Unfortunately it seems there is nothing. Maybe tubes. Some say tubes do help others say they don't.
Did not make trip to and from higher elevation because I have really been suffering since last trip. Both ears now giving me trouble and am barely able to hear. If I can, I will make the trip this Saturday or Sunday. I ordered the Flight Ear Plugs but they won't be here until after the trip. I will chew gum the whole trip and hope that helps. I am just praying I can make the trip without a repeat Meniere's episode. Reading all of the.information on the site is so helpful.
I'm sorry to her that you are suffering. Depending on what your doctor says, you could try an Ativan or a Valium. Anytime I have to travel or do something stressful like go to the dentist, I take a .5 Ativan and it keeps my ear clear and I don't stress at all.
Hello Everyone! I am new to posting on this Forum, but have been reading multiple posts over the past few years. Thank-you for the valuable information, sharing your experiences, and treatments. I have found these most helpful. I will briefly share my story and look forward to your input. I was officially diagnosed with Meniere's about 3 1/2 years ago. My ENT believes that the condition was developing about 8 years ago starting with hearing loss in my left ear and some balance issues. In Spring 2020 I had my first debilitating episode and thought I was dying of something. Lol! After every possible test and 3 days in the hospital they had nothing for me. It then took 2+ years for my ENT to give me the Meniere's diagnosis. As with most of you, I had multiple, frequent episodes, many ER visits, until the Dr. gave the diagnosis and gave me "Emergency Meds" for the disease (Diazepam, Meclizine, HCTZ Diuretic and said there is no cure but these will manage your symptoms. She then referred me to a Neurotologist (Neurologist/ENT doctor). He diagnosed me with Stage 3 Meniere's and put me on Betahistine. I think that helps with the severity and the frequency to some extent. I see him again in 4 weeks. He is considering putting in a tube to drain the Lymphatic sac or possibly severing the vestibular nerve. Anyone with experiences with these? My new issue is related to my vision. In October I went for my regular vision exam. Dr. says eyes are very healthy, update my prescription (glasses for distance only - particularly for nighttime and computer glasses. 3 weeks later, still having problems went back re-examined, new glasses checked and Dr. said all is good, I am sending you to an Opthamologist for a further exam. I went to that appointment and the Dr. said your eyes are very healthy no sign of disease. As far as my vision issues causing dizziness and vertigo he said that I have an Ocular/Vestibular dysfunction due to the vestibular damage from your Meniere's disease. He said I should see a Vestibular Neurologist (I didn't even know there was such a doctor). I told him I see a Neurotologist and he said that is about the same thing. So, my question is Has anyone else on this Forum gone through something similar? I still have my Meniere's episodes (managed by meds) and now I have episodes induced by the vestibular dysfunction. The only thing that helps me is Diazepam. It shuts it down right quick. Thanks Everyone and I wish you the best with your journey with this horrible condition. Happy Spring!
I have read that that endolymphic fluctuations are more a symptom instead of the cause of meniere. Did the drain of lymphatic sac help you?