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Discussion in 'Your Living Room' started by Lee501, Aug 7, 2025.

  1. Lee501

    Lee501 New Member

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    Aug 7, 2025
    70 year old male with first horrible Ménière’s Disease attack in mid February necessitating a trip to the ER and ENT. I then had bad attacks every 2 to 3 weeks with continued aural stuffiness, fatigue, and headache. Out of a feeling of helplessness, I searched the Internet for ANY kind of possible relief. I found clinical trials in China, (2023) in which interesting results were published regarding the use of betahistine and taVNS (transcutaneous auricular Vagal Nerve Stimulation). In April, I began betahistine 16 mg two times a day and progressed to three times a day. On June 1, I obtained a TAVNS device and begin with 15 minutes and increased to 30 minute sessions two times a day. Within two weeks I had almost become a normal human being! It was VERY obvious to me and my wife, that my symptoms had decreased approximately 75%. I know that I could have a bad attack tomorrow, but as of now, my last attack was over two months ago. I still have symptoms every day, but they are minor and manageable. I am most thankful that the attack episodes now appear to be rare. This combination treatment may not work for everyone, but since have not seen it discussed anywhere, I felt like I had to share my experience.
     
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  2. Fireblade

    Fireblade New Member

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    Feb 5, 2022
    hi there - sorry to hear you are suffering.
    thank you for sharing what is working
    please could you tell me more about the TAVNS device you are using? I've looked at the nurosym this morning and seems very expensive...!
    thanks
     
  3. Lee501

    Lee501 New Member

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    Aug 7, 2025
    I use Vagustim $300-$350? I think the lower price is why I picked it to see if I had any results at all without spending a ton of money. Now, with the results that I’ve had, it’s worth every penny. It’s not hard but it takes a little getting used to positioning the ear electrodes. Also, I think it’s important to pair the device with the betahistine (as in the trials). It takes time and I NEVER miss a dose or a VNS session. It may not work the same for everyone but if you get a Vagustim, I will share with you the basic settings that I use that have worked for me.
     
  4. Donamo

    Donamo Active Member

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    May 12, 2014
    Wow, something new! I have never heard of that sort of treatment. Does your use of the device help greatly with ALL the symptoms, like fullness, tinnitus and hearing loss as well as vertigo attacks?
     
  5. Lee501

    Lee501 New Member

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    Aug 7, 2025
    The taVNS AND Betahistine are just arrows in my quiver. My 1st attack was mid-February and now, overall, in the last 2 months my symptoms have decreased in intensity and some days I actually feel “normal “. On other days the symptoms are mild or moderate but manageable. I must admit that in the beginning I was somewhat skeptical of VNS, but no longer. It is not a cure but I definitely notice that the taVNS has an immediate calming and positive effect on my symptoms. I actually look forward to my 30 minute sessions two times a day. While it is fantastic to help with my symptoms, my greatest joy is what APPEARS to be the delay or hopefully the elimination of the dreaded next “attack”.
    I am now adding another arrow to my quiver. I am starting the “John of Ohio regimen” (see it on the forum). It seems like a no-brainer to have as many arrows as possible!
     

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