New here, diagnosed with menieres 8 yrs ago. Trying to cope.

Discussion in 'Your Living Room' started by Rose L, Sep 13, 2025.

  1. Rose L

    Rose L New Member

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    Sep 12, 2025
    I am new, 58 yr old female, not much family and sure could use support from people and willing to give support. I am having a flare up of menieres right now for the past month. Vertigo attacks, vomiting, feeling very ill. One ear closed. I have lost hearing from these flares ups also. The epley menuever sometimes helps but not always. I have no clue what my triggers are. All I know is at least once a year I have a flare up. One my ear was closed and vertigo attacks for 3 months straight. It's hard to make and keep appointments when you don't know from day to day just how sick you will be. My faith in God is the only thing that keeps me hanging on. I do take meclezine when I'm having a flare up but it doesn't stop the attacks. Was also on steroids a few times to try and get my ear to open. I also have psoriasis and psoriatic arthritis, all of which have no cures. Meds for the PA have awful side effects. Any support or ideas about menieres helps thanks
     
  2. Michael B

    Michael B Member

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    Aug 10, 2025
    So sorry to hear this Rose. I had my first symptoms of Menieres about four years ago. Back then it was just the hearing. Well this year I started getting the vertigo. I like you am leaning heavily on my faith in God. With help from this forum I have started on the JOH regime as well as starting on Valacyclovir. I am also eating a low salt diet and have gone gluten free as well. I am not sold on the low salt deal or the gluten free. Over the last two months I have lost 30+ pounds. I have been struggling to even have two good days in a row. Well I am two months in on both of these (the JOH and Valacyclovir) and have now had four good days in a row! I give credit to God AND the science that has helped many of these people on this forum as well as the medical field find avenues to help. At least here there are people who understand your struggles.
     
  3. FloridaKatie

    FloridaKatie New Member

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    Jun 7, 2024
    I encourage you to hang in there and keep going with all the things you are doing. I have posted several times as to what is helping me. I do A LOT. And I will continue to do that as long as it takes to preserve my hearing and stability. I too lean on God for my strength and healing. This forum has been much more helpful to me as I found the Facebook groups highly negative and depressing. Hoping and praying you soon have so many more good days than bad.
     
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  4. Selena Thomas

    Selena Thomas New Member

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    Sep 9, 2025
    I’m really sorry to hear you’re going through such a rough flare right now. What you described about never knowing how you’ll feel day to day really resonates, it makes planning life so hard. For me, I’ve noticed stress and lack of good sleep can make things worse, even though I don’t always catch other triggers. Some people here have mentioned keeping a journal of diet, sleep, and flare days, which can sometimes help connect the dots. You’re definitely not alone in this, and it helps to have others who understand what it’s like to be hit with vertigo out of nowhere.
     

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