Hi all Hope you are all doing well I have found myself back on this site after six years! I thought I’d pop in to say hello and update. After having a VNS in 2019 it took a while for me to get back to normal and back to work. I had great support from our balance specialist whom is fantastic at her job. Once back at work, in the NHS I received immense support, covid hit and all was well until May 2021 I was diagnosed with Breast Cancer. After treatment May 2022 I returned to work, with the support of many people once again. My Ménière’s had been reasonably stable, odd off day but life all good. In May this year my hearing suddenly dropped, the tinnitus was back. I was and still can hear my pulse. If I also touch my ear I experience what I hear the sound of an orchestra of playing really badly. When this persisted I realised it was time to see my GP whom referred me back to ENT. I was eventually seen in August, after a hearing test it showed my hearing had dropped. My way of describing the sound to the consultant was “ if you have watched The Goonies, the part when they are crossing the bridge and Andy has to play the organ, it’s the note she played wrong “, this is what I hear if I touch any part of my ear or near to it. We had a discussion about starting Amitriptyline to try and calm the nerves from the surgeries previous and we would get a 6 week catch up. We were due to go on holiday so this would be started when I returned. We then went on holiday and the first week was great and then at breakfast one morning out of the blue my head fell forcefully to the table, very frightening, after 5 minutes hubby helped me back to our room passing people as whom looked like they were thinking I was drunk I took things easy the rest of the day. The next day I went to pick something up from a low table and bang, next thing I knew I was on top off it! Again after a few minutes the disorientation went. The rest of my holiday was then spent being very careful. I was unbalanced and had several dizzy spells, thank goodness for my supply off the buccal prochloperazine I always have with me. On return I was signed off work and went back to ENT. I was told I was experiencing Tumarkin attacks! I feel unsteady all of the time and have not been outside by myself. I am having short dizzy spells frequently. It’s very frustrating as I am normally active. I am awaiting an MRI scan before I speak to my consultants colleague in Ninewells where I had my previous surgeries. Not sure what’s going to happen. I suppose I am looking to see if anyone has experienced the sensitivity of their ear like described? Anyone have experience with Tumarkins? Not sure why this has suddenly come back after having a VNS, why am I experiencing this awful disease once again! Thank you all for taking the time to read. Caleygal x