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@Clare, I'm actually getting implanted next Wednesday as a SSD recipient. I definitely will keep the group here updated!
I've had tinnitus since the end of 2004, so do the math. Some days its mild, some days it's strong...just depends. I have been deaf in my right...
Had the pneumonia vaccine Monday as part of my pre-op for CI surgery in two weeks. No issues at all so far!
I went bilateral 15 years after original diagnosis. Strangely enough, original diagnosis was endolymphatic hydrops (right ear) and now my left ear...
Have had all symptoms you describe. The voices sounding like they are coming out of tubes is very accurate and hard to get people to understand. A...
Agree with the antiviral suggestions. I am bilateral myself, although the 2nd ear to go only has cochlear hydrops (so far). I believe antivirals...
Ent is not the right doctor for this. See a neurotologist or an otolaryngologist.
@Michael68DC, this totally resonates with me, having worked in an office environment for more than 20 years, 15 of which with this diagnosis. Very...
I have had a laby and no issues in the shower, eyes open or closed. The brain compensates and is an amazing thing.
Varies. good days/weeks...all the salt I want. Bad days/weeks...not so much.
@redwing1951, My laby was 6.5 years ago in the right ear, which is the one that will receive the CI. My neuro and I had discussed the CI...
@Riplip, my last attack came a couple months ago on a business trip and it was so bad that I couldn't understand speech at all. After that, my...
I would say go for the AVs. As others have stated, I think the dosage prescribed to you is pretty low--3,000mg/day seems to me the sweet spot. I...
Figured I'd create a new thread instead of posting on my previous one since this topic is more apropos, but I just wanted to provide an update...
@June- , its hard to say. I've actually noticed it getting worse in my deaf ear after eating, but as like everything else with this disease, its...
Getting closer...1 more test to go and that's the VNG (insert collective groan) I've been told my max out of pocket not covered by insurance will...
@CarolineT, I don't claim to know much about your system in the UK, but I do have private insurance here in the US and as I understand it, the...
Thank you, Caroline! I have tinnitus in my laby ear all the time in a high pitch. My hypothesis is that that's the last tone I lost as the hearing...
Thanks, Mac, much appreciated! If this helps, I ride a motorcycle now! Going bilateral to date has only affected my hearing on the previously good...
Had my hearing test today...Audiologist is onboard with recommending me as a CI candidate. Few more hurdles to negotiate, but hopeful!