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I was there for 3 hours total. I'm told the next session is about 2. They went through my entire case history to confirm eligibility, took blood,...
A quick update from me - I'm now officially in the trial and took my first dose of whatever I got today. Frankly, I knew it would be a tough day,...
Not to worry you won't have to stop taking any supplements. I'm on Valtrex and that doesn't even exclude me from the study.
Here are the details. SPI-1005 for the Treatment of Meniere's Disease - Full Text View - ClinicalTrials.gov
Hoping, I believe most trial clinics are only accepting applicants until the end of the month. Of all the places I contacted, only 3 got back to...
Thank you! It took me waaaaay longer than it should have to get here, but I made it. Appointment is tomorrow and then I head home later in the...
I guess what I don't really know is what the full trial entails. The 3 month period of the trial is supposed to be done sometime this summer. Then...
I don’t think many people know that. It still needs to get through the phase 3 trials which won’t finish until August 2024 at the earliest.
it costs nothing since it’s a clinical trial. In fact they pay you $50 a visit.
Mosen, have you taken a prescription antiviral at any point? Acyclovir, Valacyclovir, and Famciclovir are the top three.
I crossed the border last September for an MRI. At the time I would have had to wait 4 months to get one in Canada. It cost me $800 CAD but was...
A question for those of you who are actively participating in the trial. When you go for your visits do they let you see the results of your...
I feel for you and the position you’re in. This disease is hard enough, never mind without the support of loved ones. I do understand that they...
yellowman, yes, that’s correct. The clinic doesn’t care about citizenship, just that I have Menieres diagnosis, which I do, and had to provide...
Ha! I forgot about that! That's something like $65 in Canadian Pesos. LOL
Yes it's definitely not that. I have fluctuating sensitivity to low frequency, what many would call "distortion". Inexplicably some days sounds...
I think they almost need to do that in order to get participants, although this disease can be so terrible at times that I'm sure there are many...
I'm heading to beautiful Florida. Most trial sites never returned my request for info, and this site was the only one who responded who was...
I'm enrolled in the study, so we now have 4 people on this forum participating in the phase 3 trials. This is going to be a large financial and...
Good point. We know it made it to phase 3 because of compelling evidence of its effects. We also know that people who gain relief often disappear...