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May I ask what improvement you saw with it ? How soon after being on the actual drug did you see the improvement ?
I have maddening tinnitus and fullness and lately my fullness has gotten worse. Was diagnosed in 2019 and my tinnitus is a roaring 12 on a scale...
Here’s the story on betahistine, which helps me unfortunately the trial drug did not What is betahistine used for?
I have been wearing one aid in my good ear - my bad ear is not correctable. I tried a Cros set about 2 years ago, but did not want to spend...
I would look into a higher dose of Betahistine. I am on 16 mg 3 X a day , safer than Pr zone, good luck, GOD bless, HE is the only one that can...
When I was in the study my clinic rep told me that the drug company that was making it was being looked at for some ethics issues - not really...
I'm in do I PM you ?
Try the Betahistine, it's safe with no side effects and works 99% for me. Low sodium and diuretic did nothing for me-- I eat what I want.
I get mine in US- North Carolina I pay $ 150.00 US for a 3 month supply. 16mg - 3 times a day PM me if you want the pharmacy .
I am tired all the time. But that said I have to take a pill to stay asleep. I would be fine with not waking up some morning - the only way to...
Good luck to you all. none of us deserve this damn disease
I wanted to add something - I asked my clinician if she thought the drug would be approved, she said she would be surprised if it was. When I...
I do remember remember reading they were fairly high in positive results. I got my hopes up, unfortunately .I don’t get it to be honest with you.
Glad it's helping Mark, but not so glad that you will have to stop it in July. Hopefully the Betahistine helps you. Interested to see if it makes...
yes on the dropouts , 20
My last visit for the drug trial was supposed to be last week. I decided not to go since the drug did nothing for me. I called the clinic and told...
I called my ENT about this, he would not prescribe them for me, said it would not help my tinnitus:(
Try Betahistine for the vertigo, in the US you will likely have to pay out of pocket as it's a compound drug. I was told the only plan that covers...
No improvement after 6 weeks . I sent it back to be re tuned and just got it back a few days ago. If it does nothing after 12 more weeks it's...
Mark, curious why you haven't tried Betahistine yet ? My ENT put me on it as soon as I was diagnosed. My vertigo went from very bad episodes 3...