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This disease is so heterogenous. I am pretty sure sleeping makes it worse. It even gets worse after a nap so it is not the time of the day.
Ah you are right then. I think the doctor should be cautious of the epilepsy diagnosis - That makes more sense now. I think it is a good idea to...
I agree with you about Caffeine. Although I am too scared to start right now, I remember drinking it in the morning actually helped me focus and...
It sounds like you are quite frustrated with your doctor. But, dismissive as he is, he is a trained neurotologist who has seen many patients. He...
I am sorry to hear this. I too was in remission for 6 years before symptoms started again. For me tinnitus doesnt bother me but the constant...
Well for me, even these minor attacks where the room is not vigorously spinning, if I really pay attention to my eye movement, there is a slighy...
Sorry for the double post but I didn’t see an option to edit my original post. Received 5/5 IT steroid shots. I was fine the day of but...
Just checking in how your labyrinthectomy went.
Hope things are working out for you.
Any update on what you decided to do?
Update with my 4/5 intratympanic steroid injection. Everytime I get the injection, my ear responds differently. This time my hearing went down...
Hi there, I would believe your ENT. They are the best people to even properly see and assess your tympanic membrane. It would be very easy for...
Update to my situation. Currently on Valacyclovir and JOH regimen. Did 3/5 IT steroid injection. I think there has been gradual improvement...
Have you asked your ENT for intratympanic steroid injection?
Do people recommend monolaurin or olive leaf extract or both? (on top of l-lysine)
That’s totally the opposite… I dread going to sleep knowing that my ear will get plugged up in the morning. I tried sleeping on an incline...
Hi John, Thanks so much for the reply. I am taking 2500IU of vitamin D but may bump it up as you suggested. Unfortunately, I get diarrhea with...
Thanks for the suggestions. I am going to keep taking AV and JOH regardless. Just a bit discouraged this time. Regards to the potential...
Hi everyone, I hope it is okay to share/vent my story here. I just had alot on my chest recently. If it is not, please delete. I was diagnosed...
That was similar to how i was when it first started. But I’ve been noticing now that fullness and hearing loss doesn’t always lead to vertigo...