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Focus on the FDA. Sound Pharma is run by a smart crew...They will be shooting for fast track without any help from us. They know the deal with...
Dnprn, Here is the address. In the past I have asked close family members and friends to write as well. Go get them! Food and Drug...
Zotjen, Personally... I think the focus should be - how do we put the full court press on the FDA to get this approved asap? This is not a cure....
For those of you having a crappy day...read this: Sound Pharmaceuticals announces positive topline results from the SPI-1005 Phase 2b Meniere's...
That's great...I have not been there but I have spoke to them several times. Great group of human beings. They are trying so hard to start a...
Hey Ron, I'm not so sure "burnout" is a goal worth achieving. I was diagnosed 12 years ago and have lost most of my hearing in my ear. 3 years...
Just got an alert from the Mind Over Meniere's website that they are doing a documentary on MM. In the email Glen (the guy who runs Mind Over...
Great accomplishment BD...very inspiring.
Just noticed VEDA is now partnering with the Hough Institute to raise money to start a clinical trial for MM patients. I would assume most of...
Good Man Tony!! Thanks for your service!! They have been working with Vets for many years with hearing loss. Every penny helps. No worries Cal...
What did you see? : ) They (Hough) are one of the leading hair cell regeneration research groups in the world. As you know...all of your...
Reminder...Hough Ear Institute is still looking to raise money to launch a Phase 1 Trial for MM. They feel very confident that their drug may help...
Thanks for sharing! Trust me...we all know how you feel. Its one of the few places where people actually understand your symptoms. Hoping you get...
California Sun, Your quick bio (you gave) really caught my attention. You got your first shunt surgery in 1974? That was 45 years ago. I also saw...
1974...holy cow!! I am not to good at math but I think that means you had the shunt surgery 45 years ago. I was diagnosed at 28 and had the shunt...
Good news!...
Good luck Sarah!! Please let us know how your recovery goes!
Quickest fix is to have the doc put a tube in your ear. It will equalize the pressure. I had one put in 2.5 years ago. It will take care of this...
"Also not a gene or "stem cell" therapy. Same with Decibel, i believe." FNC - you are right....I was just being lazy and did not want to go into...
Completely agree Sid! Unfortunately gene therapy is not even close. I have been in touch with the leads at Johns Hopkins. I met them in person in...