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I have said this in many threads, but I believe prosthetics are our best option -- to treat other hypovestibular disorders and hopefully even...
We need to take on the fight. Discuss organizations spear-heading treatments, potential fundraisers or fundraising ideas, what you've personally...
See the thread about the drug study, Claire. I talked a bit about what we could be doing.
I still think John Hopkins is our best bet, but I know little about them other than they're testing some kind of prosthetic. We need an open-line....
I had heard that Willheim, but wasn't sure if it was rumor.
I learned every dragon guards a horde of gold. It's time to slay our dragon, take back our lives, and give a wealth to future generations. If we...
I think most importantly and most immediately, we need a stickied megathread so we can at least organize ourselves.
We need to find our best option and line-up manifold behind a leading spear-head. We need to find the organization best equipped in spirit and...
It is in the federal government's best interest in the US to fund this. Menieres is a disability and loads of people draw from SSI (currently I do...
I still believe a prosthetic is our best shot. Drugs are going to continue to be a band-aid -- perhaps not antivirals, but other drugs -- till a...
Additionally, I've seen figures putting going bilateral as high as 50% arguing that the lower percentages have more to do with lack of long-term...
We are a faux-orphan disease. 1/500-ish isn't that rare. With noise we should have overwhelming support. ALS is 1/100,000 and they literally...
The guy I heard about was bilateral, though I don't know why he was bilateral. I'm not sure this is the same device.
I do wonder, though, if the ear must be somehow intact. Like I’m curious if this would be usable by us or if something else would need to be done...
Also thank you for the link.
This is the thing we should be hounding. I wonder if there’s a way to donate specifically to this research? Then we may be able to direct...
As far as I can tell, this would be our best shot and the option we ought to push for availability in the immediate future, but I haven’t heard...
I’m pretty tired of the MM community’s lack of interest in pushing for effective treatment as well. A few absolutely amazing people have made...
I had a very hard time locating Northstar generic. I also have no idea if a/vs will work for me, but if you do switch I've found Rite Aid carries...
I know I have limited range of motion in my neck and my shoulders are sensitive. Doing all of this already seems overwhelming, but ... so is doing...