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I know gacek's paper said best results were seen in early management, but his follow up was only after a year, I think. Maybe thinking of another...
I have been having symptoms for nearly exactly 4 years. I'm having trouble getting anyone to write a script for antivirals. As of a year and a...
Thank you so much, man. I haven’t exhausted all my options in the short-term, personally. Antivirals are still on the table, but I would like to...
https://www.hopkinsmedicine.org/otolaryngology/research/vestibular/VNEL This seems like a hopeful place to start.
We will need to compile a registry of places accepting public donation. Encourage and begin a challenge. Talk about what we share in common....
What if my daughter contracted this due to the same susceptibility. What about your kids? What about you, now? I would not wish this on an enemy....
In my only other thread at the time of writing this, I proposed an awareness challenge. I think this definitely deserved a dedicated post. My...
We need to do a challenge. It has to be beaten. Everyone here can empathize with the feelings of helplessness and no one may save us if we do not...
How does this community generally feel about future hope? I understand I am better off assuming it may be well down the line. Even if I have to...
I am really trying to hold onto hope I'll one day not have vertigo and dizziness via implant. I really don't know. I am trying to accept it as a...
This is a silly question to include here, but have we ever done like, a challenge for a cure type thing? Like the ice-bucket challenge, but...
Now I’ve just gotta find someone to put me into a medically induced coma for a decade lol.
I mean, there’s immunotherapy for cancer now. Given, there’s a lot more funding there, but we’ve gotta be close, I think.
I have been reading about vestibular implants. That seems really promising? I hope to ask my doctor about anti-virals. I think because of my...
I honestly don’t understand how people here are getting through it. The idea of having it so long is mind boggling to me. Frightening. Do...
What do you mean?
It is frustrating I can’t edit posts. What about double labrynthectomies? Or same thing? I would just like to know where I am in 20 years. Unless...
I was recently diagnosed bilateral at 26. I am concerned about what the future entails.
I read a few people here have had it done with some success? Like Bulldogs?
Hi, I'm new. Sort-of unfortunately, but glad this place exists. Are bilateral nerve sections possible?