Separate names with a comma.
Headache and lightheadedness are VERY common and persist for some time. Sometimes they don't go away, but you learn to manage them. Keep your eye...
Yanksgirl, I have almost identical symptoms to yours. It's beyond frustrating, especially when you look so "normal" on the outside. I will go to...
Lisa, take it from one neurotic to another: try not to anticipate what will happen to you too much. It is rarely like anyone else's experience.
What foods are high in arginine?
GLA: Are you able to walk in the dark or ride a bike? I know these are weird questions, but I'm curious.
RV, a little defensive, huh? If you read the question properly, my curiosity, not my diagnosis, was how the doctors decided it was syringomyelia....
(Hit send too soon.) The reason I ask is a syringomyelia is a cyst in the spinal cord. It has nothing to do with Menerie's-like symptoms. Just...
RV, What kind of test did they do to diagnose you with this? How do they know it's the CSF?
Go to a psychiatrist and ask for it. Say you're completely nervous/anxious and have miner's disease. They will give it to you.
How long has it been since you've had the surgery?
Once you taper down to a maintenance dose, can you switch out the anti-viral for lysine? If so, how much?
enjoy: what do you mean by "giddiness"?
tmc: PLEASE, TELL ME...how does one get over the "holy crap, my life is over"? Conceptually, I understand it's necessity, but I don't understand...
tmcmahon2: Ha! I like that. Glad to see someone can still poke fun and have some humor in the face of this retched disease.
CI is only for bilateral deafness. You have to meet certain criteria to be eligible for the implant, but maybe you are. Something you might want...
Yes, it does. Unfortunately, it sounds like a typical Meniere's attack.
Rod, do you wear hearing aids or have a CI?
Lysine without food and the antivirals with food, correct? So I'm not taking them at the same time.
Yes, I get it. I know we are all different. I've spent years reading of people's success's with the same treatments that have failed me. I guess...
Sharon, is the 1200mg the dose you've always been at, or one you've tapered down to?