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Hey everyone, Just giving an update on my diagnosis or lack of. My ENT was unsure if it’s Hydrops or AIED or progressive hearing loss since...
I started the lysine yesterday, only 2000. Going to make it up to 3 this week. I’m sensitive to everything so going slow. I also started the b5/b6...
Thanks for the reply! I’m going to make an apt with Dr.Leher and hopefully he can help give me a diagnosis. Since he has the most experience, he...
Hi David, definitely ask for a hearing test, I wish I had one sooner to compare. I agree with asking how familiar they are with Menieres...
Rich, it’s funny you say this-well more sad then funny but you get me. My PCP offered me kalonopin over anti-virals. I fully believe he thinks I’m...
Hi, I live in NJ. My rheumatologist advised me to get a second opinion. Does anyone have an ENT or preferably neurotologist in the NJ/NYC area? I...
Hi- So my ENT and PCP believe I have Hydrops. Neurotologist thinks autoimmune inner ear disease or I have hearing loss that I’ve just always had,...
Hi, I’m curious who you saw in NYC if you wouldn’t mind. Thanks! I’m also seeing an ENT there.
sorry that reply was for you but forgot to add you!
I’m about the same amount of time in as well and I break down at least once a week as well. I’m so worried for my future hearing loss and just...
I’m going to start treating tomorrow. I’m also going to ask my rheumatologist to test me for Epstein barr. What starting doses should I do of...
Hi! Thanks for the reply. I’m new to this and a little confused. Can I get a bloodtest for the Epstein bar virus?? I will definitely buy these...
Hi! All of my allergy testing was negative, I’m going to see the rheumatologist who specializes in AIED and go from there. It’s so frustrating not...
Thanks so much. I definitely will keep you posted. Hopefully I will get some answers. I was suppose to start IUI next month and sadly need to hold...
Rich, you are a saint for reading all of this. Very much appreciate your input. I’m 7 days off ALL meds except Synthroid and my tinnitus is the...
Hi all! After a week of stalking this page, I realized that everyone here seems to be smarter then most ENTs. I’m wondering if anyone can help...