I came to these boards three years ago, while I was investigating the cause of my vertigo. In the end, my doctors and I decided it was more migraine than Meniere's. I've been treated with botox and I really am a lot better, although I do still tire easily. But here's the thing. Because I've been learning from you'all on these Meniere's boards, I know the symptoms of Meniere's really well. And recently, I've had these incidents that are completely different than what I was experiencing before. I get these really quick episodes where my ear feels full, then I hear this wining noise, then I feel off balance. It only lasts ten seconds, max. Then it just passes and I'm fine. Classic right? Except some of you get this for hours or days??? I can't imagine. I wonder if I had meneir's on top of the chronic migraine the whole time. Or if they were always part of the same thing? The new research coming out says that they are both result of blood vessel problems. I don't know exactly why I'm here, except that this sounds crazy to anyone who's never experienced it. And I am so grateful that its only a few seconds. And I hope that all that stuff about inevitable progression is just plain wrong. Because a couple seconds of weird is really no big deal after the ordeal that I've been through. If anyone has a source of information on the most agreed upon preventative measures, I'd be interested to hear them. When I was last here, the low-salt diet was being called into question as a preventative measure. I don't think its really worth it to go back to the doctor now. He kind of wrote me off last time. And I'm actually a LOT better, healthwise, than I was when I saw him.
Sorry you have to be back here! Still sounds like MAV to me. I have Meniere's and yes the ear pressure increases, the ringing increases, the hearing goes completely away and then at some point I will have a full room spinning attack for 4-6+ hours. I would recommend that you look into food triggers to see if there is something that is triggering these short bursts...even though short still not good nor fun to experience for sure!
Migraine does not cause a sense pressure in the ear. Nope. The only thing that gets me is that it passes so quickly. It makes even me wonder if I was imagining things. You know, the really annoying thing about migraine is that everyone just hears "headache" and assumes that if you stop eating bananas or sufates that it will magically go away. Right? When you say this to a chronic migrainer, you just show yourself to be ignorant. Food sensitivities make a serious impact on 1/3 of migraine sufferers. Do the math and you'll realize that 2/3rds of migrainers DON'T have food triggers. So the next time you encounter someone who might have migraines, I REALLY advise you to stop it with the food triggers advice. It's not welcome. Its condescending and spits in the face of all the hard work people like me have done to "find triggers." I suppose if you find someone who really is at the beginning of their migraine journey, you could GENTLY ask if they've explored that yet. But really, it's the first thing most of us explore. So don't be surprised if they roll their eyes and tell you've they've tried that already. Its the one thing everyone thinks they should say to a migrainer. In case you haven't guessed this by now, it gets rather annoying after a few years. To specify, I was looking for any updates around Meniere's disease in the last three years.
Wow. You can rest assured that I will never share any feedback. Being rude to people who are only trying to help is not acceptable.
Nicmger was very empathetic with you and clearly was trying to help you. You mention ignorance in your reply to nicmger. Ignorance seems to be something that you know alot about. I mean who rattled your cage, if you come on to a support website and ask for help don't throw that help back in their face. Have you come on here to seek help and perhaps help other people or are you here to be rude. You owe Nicmger an apology.
Some people have a combination of MAV and MD. Don’t discount the trigger theory. Triggers can be both dietary and stress related. It is not as simple as just cutting out salt, caffeine etc. The Buchholz book is well worth the price of admission...
Nice doctor. They are a trip. It could be MAV or something that no doctor or the medical field has figured out. I am convinced that for the most part we all have something slightly different from each other and that there are things they cannot figure out. One of the reasons is they do not consider nor can they measure is the effect the emotions have. Another is they do not take detailed pictures of the inner ear. One day, hopefully it will be as routine as a leg X-Ray. Third reason is they do not give it the time it deserves to figure it. Fourth reason limited knowledge and bias. I wish you good health.
Thanks imback. I don't think I'll be back again. (pun intended!) This place has gotten so nasty! It's so interesting the way that cultures of forums can develop and change over time. A few years ago, this was a really supportive place. Just FYI, I'm also autistic. So, sometimes I don't use words in a way that non-autistic people can receive well. But here's the thing, that never mattered before. Nobody just wrote off a new people after one post. And nobody "jumped on the bandwagon" just to tell a new person that they don't like them. Humans are so weird. Why would you waste your time doing that? I wish you well, and I hope you find good health, too. I'm going to erase my account now.
I wish you wouldn't. In situations such as this it's better to agree to disagree. There are many fine people here. You can't let a few people or a person make you leave. Why? Or you could use the ignore feature and ignore all of particular peoples posts. I wish you well and good health.