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endolymphatic sac decompression

Discussion in 'Your Living Room' started by snuka, Jan 30, 2018.

  1. I had an endolymphatic sac decompression/mastoidectomy in 2012. This surgery was one of the worst mistakes of my life. My doctor never mentioned that scar tissue could occur, as this this is supposed to be a rare side-effect. Well, it can’t be that rare. It happened to me. Also, I’ve since had a surgical labyrinthectomy, in 2016. Minus the predictable miserable time immediately after surgery, while in the hospital, I found that recovery from the 2012 surgery was much worse. At one point, I became so ill that it looked like I had two black eyes, and the whites of my eyes became TOTALLY blood red, due to throwing up. If my other ear goes south(which it seems like it is, though more slowly) I’ll go straight for the surgical labyrinthectomy. NO WAY will I have another endolymphatic sac surgery!!!
     
  2. snuka

    snuka Member

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    I did the surgery Monday, and it went very well. I have no problems after the surgery, besides the ear being really swollen and I can't hear much of anything yet. I had no vertigo and was able to go home that night. No side effects that I can tell.
    I've read a lot of nightmares about this surgery, but my experience was the complete opposite.
    It's going to take a couple of months for the swelling to go down and for me to know how much it has helped. I did it to preserve hearing mostly. My Doctor thinks is was the fluid building up and creating pressure, making everything distorted.
    If anyone is thinking about doing this, I highly recommend it.
     
  3. tornadito68

    tornadito68 Member

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    Great to hear. What's the name of your doctor and what city and state?
    Thanks
     
  4. snuka

    snuka Member

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    Thanks.
    Dr. Moises Arriaga, (New Orleans, LA. or Mererro, LA).
    He has Youtube videos out if you're interested in hearing him talk about MM.
     
  5. Nyynth

    Nyynth Member

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    I’d be interested to see the research stating avs have no efficacy, tbh.
     
  6. Nyynth

    Nyynth Member

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    JOH is practically built on the viral idea. Obviously so are avs. The idea they’ve worked for no one seems almost impossible unless everyone with positive result here and those that have tried JOH are lying or coincidentally improved. I don’t know. That’s a lot of people.
     
  7. Clare

    Clare Active Member

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    I asked my ENT (otoneurologist) about her view on antiviral treatments when I saw her today. She said there are many viruses floating around in the body. She wasn't aware of published scientific research into a connection between Meniere's and antiviral treatments, in part because the spontaneous remission and active phases make it such a difficult disease to draw conclusions from. She didn't seem to take a position on it one way or another. Regarding allergies, she said she knew of one, and only one, researcher who is convinced of the benefits of treating Meniere's with antihistamines.
     
  8. Nyynth

    Nyynth Member

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    The only published research I’ve seen indicates improvement, but yeah sporadic remission definitely would make it hard to tell without an actual double-blind study. As far as I know that doesn’t exist.
     
  9. Rebecca

    Rebecca Member

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    Snuka, it is now May 2020. I was just wondering if you were still on this forum and if so how things are going for you since your surgery. I am suppose to do this June 1st and these stories are scaring me to death!!
     
  10. Cheryl

    Cheryl Active Member

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    Rebecca, there have been many members of this forum that have had shunt surgery. For some it was very successful in stopping vertigo for a long period of time. For some, it worked only a short time. For people like me, it was a disaster. Following my shunt surgery in 1993, I was left with profound hearing loss in the operated ear. Not only did it do nothing to stop my vertigo attacks, they became more frequent. I was supposed to stay in the hospital overnight, but ended up being there for four days because I woke up from the surgery with vertigo and it wouldn't stop. I never fully recovered from shunt surgery. Eleven months later I had a VNS to stop the unrelenting vertigo.

    I don't think shunt surgeries are done much, anymore. I was told that they can become clogged, dislodged or become encased in scar tissue, any of which would cause the shunt to stop working.

    I'm sure this wasn't a decision you came to lightly. I wish you all the best and hope you come through it with flying colors!
     
  11. Tony Wilson

    Tony Wilson Member

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    Hi Rebecca,
    I had the sac decompression performed last September by Michigan Ear Institute and recovery was a breeze. They don't believe in the shunt just a decompression of the area - I've been vertigo free since and have put some good days together even on bad diet choices. A good doctor is key, when other doctors send their kids to your guy/gal for surgery odds are you've found the right one. Message me for more info or to setup a call. Good luck
     

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