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Fed up with Fullness!!

Discussion in 'Your Living Room' started by Jedirusty, Apr 9, 2019.

  1. Tacio Domingos

    Tacio Domingos New Member

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    Jun 19, 2019
    Spain
    @Jedirusty, the whole aural fullness thing gets better when I take diuretics. Hygroton worked really well for me. Recently another ENT prescribed Hydrochlorothiazide as it is apparently milder. And so better as a long term solution. It does not seem as effective though. You can also consider a low-carb diet to avoid fluid retention.
     
  2. Onedayatatime

    Onedayatatime Active Member

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    You have nothing to lose by going LOSO. It helped me for a year or so. Then the disease overran it as symptoms got worse.
     
    • Fistbump/thanks Fistbump/thanks x 1
  3. Megan M

    Megan M New Member

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    Nov 2, 2019
    Hi, I’m curious who you saw in NYC if you wouldn’t mind. Thanks! I’m also seeing an ENT there.
     
  4. Daniel

    Daniel New Member

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    Mar 3, 2019
    I see Dr Lustig at Columbia Presbyterian.
     
  5. Irishstu

    Irishstu Member

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    Apr 28, 2019
    Hi Megan. Im wondering if your Doctor perscribed the anti virals or if you had to push to get them. I guess im trying to see if neurotologists are now recognising that anti virals work? I have been on JON and B supplements for 3/4 months and have seen good improvement.
     
    • Winner Winner x 1
  6. Megan M

    Megan M New Member

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    Nov 2, 2019
    Hi-
    So my ENT and PCP believe I have Hydrops.
    Neurotologist thinks autoimmune inner ear disease or I have hearing loss that I’ve just always had, it’s just me. So none of them mentioned anti virals. My PCP and ent mentioned low blood pressure meds. So I really am not sure if the neurotologist would have recommended anti virals.
    Basically, I’m zero help to your question! Hahaha
     
  7. recoveringoptimist

    recoveringoptimist New Member

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    Aug 10, 2019
    Daniel - I haven't seen a follow-up from you on these treatments. How are you doing now, seven months from this original posting? What's been effective for you?
     
  8. Daniel

    Daniel New Member

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    Mar 3, 2019
    One of the best things that I have done is figured out that caffeine is a trigger for my symptoms. And for me, unfortunately this means any caffeine, even decaf products. So I haven’t had any caffeine , even decaf, for about two months now. My symptoms are marginally improved without it. Less fullness, less tinnitus , feel like I can hear very slightly better.

    Other than that I am still on antivirals and some of the JOH regimen. I started allergy shots about 5 months ago and get them once per week. I don’t think they have had much benefit just yet, but my understanding is they take some time. I did have a very minor improvement in my last audiogram (August) in the lowest frequency from a 40db loss to a 35db loss, so hopefully that continues. I have another hearing test next week and will report the results
     

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